Information required for All Party Parliamentary Group on ME (APPG) on 22 January. Please can you help I am collating information given on page two of the membership questionnaires for the current year.
There maybe a few people I will contact direct if I have specific questions following on from their replies, but in the meantime, if you have seen Dr Mark Roberts and have (or have not) been referred to the Local Multi-Disciplinary Team (LMDT), and feel there is anything you would like to add either about your appointment with Dr Roberts or the LMDT - please let me know. (Names are not included on the collated information) The following describes the type of info required: Permission to Repost Following are extracts from messages received from Charles, on IMEGA-E
(he has given permission to repost) "It would be very helpful if anyone … … … could let the MEA know if any significant changes have taken place, or are due to take place, with regard to existing NHS services provided by the 13 CNCCs (Clinical Network Co-ordinating Centres) and their LMDTs (Local Multi-Disciplinary Teams) - especially closures or cut-backs that have not already been discussed by the APPG.
We can then raise these as specific issues with Ann Keen at the APPG meeting on January 22. It's most important that we get to know of any concerns re CNCCs and LMDTs that are not already on record. A similar request for info will be going out in January ME Essential. The MEA wants to receive all types of feedback about current and proposed NHS hospital based services for people with ME/CFS. This can include: positive experiences;
negative experiences;
concerns;
information about closures or cutbacks etc etc. We are quite happy for this request to be reposted as widely as possible." Renewal of your membership helps the Group help people with ME/CFS/FMS. If you have been meaning to complete the form, but not got round to doing so, - please send it to Bob soon. His address is on page 2.
Jill Pigott
Patient/Carer Representative
Worcestershire M.E. Support Group
There maybe a few people I will contact direct if I have specific questions following on from their replies, but in the meantime, if you have seen Dr Mark Roberts and have (or have not) been referred to the Local Multi-Disciplinary Team (LMDT), and feel there is anything you would like to add either about your appointment with Dr Roberts or the LMDT - please let me know. (Names are not included on the collated information) The following describes the type of info required: Permission to Repost Following are extracts from messages received from Charles, on IMEGA-E
(he has given permission to repost) "It would be very helpful if anyone … … … could let the MEA know if any significant changes have taken place, or are due to take place, with regard to existing NHS services provided by the 13 CNCCs (Clinical Network Co-ordinating Centres) and their LMDTs (Local Multi-Disciplinary Teams) - especially closures or cut-backs that have not already been discussed by the APPG.
We can then raise these as specific issues with Ann Keen at the APPG meeting on January 22. It's most important that we get to know of any concerns re CNCCs and LMDTs that are not already on record. A similar request for info will be going out in January ME Essential. The MEA wants to receive all types of feedback about current and proposed NHS hospital based services for people with ME/CFS. This can include: positive experiences;
negative experiences;
concerns;
information about closures or cutbacks etc etc. We are quite happy for this request to be reposted as widely as possible." Renewal of your membership helps the Group help people with ME/CFS/FMS. If you have been meaning to complete the form, but not got round to doing so, - please send it to Bob soon. His address is on page 2.
Jill Pigott
Patient/Carer Representative
Worcestershire M.E. Support Group
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