Following the General Election, Action for M.E. and the ME Association have provided the following update, as joint-Secretariat for the All-Party Parliamentary Group (APPG) on ME.
“ We understand the need to ensure that ME is kept firmly on the agenda of the new Government and that the All-Party Parliamentary Group (APPG) on ME plays an important part in this.
As is parliamentary procedure, all APPG’s are required to disband following the call of a general election and must then be reconstituted, once the election has concluded, and a new Government is in place.
Sadly, the APPG’s previous Chair, Carol Monaghan, was not re-elected as MP for Glasgow North West and therefore, we will now work to identify and secure a new Chair.
Sonya Chowdhury, CEO of Action for M.E., and Charles Shepherd, Honorary Medical Advisor to the ME Association, will meet in the coming weeks to discuss this further.
Whilst these discussions can take place, ministerial appointments are still ongoing and therefore, with summer recess approaching, now is not an appropriate time to look at reconstituting the APPG. Instead, whilst appointments are being made, we will use this time to review the APPG’s communication strategy to ensure that once it is reconstituted, we can share information relating to the APPG’s work and outcomes more effectively. As part of this, we will ensure that any updates on the reconstitution of the APPG on ME and its incoming Chair, are shared as soon as possible. ”
Local MPs (Worcestershire, and surrounding areas)
The Worcestershire ME Social Group website list of Worcestershire MPs has been updated with all newly elected MPs. Plus, this now includes a link to all West Midlands MPs.
On 9 July, all Worcestershire MPs heard from the Worcestershire M.E. Social Group. This notification gave a few extracts from the Social Group website to give background information, particularly for newly elected MPs, firstly explaining that the Worcestershire ME Social Group, is for all people affected by M.E. (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome), PVFS (Post Viral Fatigue Syndrome), FMS (Fibromyalgia Syndrome) and Long Covid, within Worcestershire and surrounding areas.
Our MPs received Worcestershire NHS M.E./CFS and PCS Services News giving an update on the local NHS ME/CFS situation received on 3 January 2024, from Marina Townend, Specialist Occupational Therapist/Team Lead, of the ME(Myalgic Encephalomyelitis),/CFS (Chronic Fatigue Syndrome) and PCS (Post-Covid Syndrome) Services, plus NHS ME/CFS Specialist Services..
Also, it was pointed out to all our MPs that The Worcestershire M.E. Social Group’s Symptoms of ME/CFS information sheet has been updated, with the “Symptoms for Suspecting ME/CFS” Section of Myalgic Encephalomyelitis (or encephalopathy) / chronic fatigue syndrome: diagnosis and management: NICE guideline [NG206], published on 29 October 2021, now included on the reverse. .Many people have found this information sheet useful when describing how they feel, and explaining their situations to their doctors. Hopefully you will also find it useful when you contact your MP,
All-Party Parliamentary Group APPG on ME
A cross-party voice in Westminster building change for people with myalgic encephalomyelitis (ME).
The All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME) seeks to improve health, social care, education and employment opportunities for people with ME and encourage biomedical research into the cause and treatment of ME.
• Action for ME • A.P.P.G • M.E. Association • MP • Worcestershire • Worcestershire M.E. Social Group
“ We understand the need to ensure that ME is kept firmly on the agenda of the new Government and that the All-Party Parliamentary Group (APPG) on ME plays an important part in this.
As is parliamentary procedure, all APPG’s are required to disband following the call of a general election and must then be reconstituted, once the election has concluded, and a new Government is in place.
Sadly, the APPG’s previous Chair, Carol Monaghan, was not re-elected as MP for Glasgow North West and therefore, we will now work to identify and secure a new Chair.
Sonya Chowdhury, CEO of Action for M.E., and Charles Shepherd, Honorary Medical Advisor to the ME Association, will meet in the coming weeks to discuss this further.
Whilst these discussions can take place, ministerial appointments are still ongoing and therefore, with summer recess approaching, now is not an appropriate time to look at reconstituting the APPG. Instead, whilst appointments are being made, we will use this time to review the APPG’s communication strategy to ensure that once it is reconstituted, we can share information relating to the APPG’s work and outcomes more effectively. As part of this, we will ensure that any updates on the reconstitution of the APPG on ME and its incoming Chair, are shared as soon as possible. ”
Local MPs (Worcestershire, and surrounding areas)
The Worcestershire ME Social Group website list of Worcestershire MPs has been updated with all newly elected MPs. Plus, this now includes a link to all West Midlands MPs.
On 9 July, all Worcestershire MPs heard from the Worcestershire M.E. Social Group. This notification gave a few extracts from the Social Group website to give background information, particularly for newly elected MPs, firstly explaining that the Worcestershire ME Social Group, is for all people affected by M.E. (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome), PVFS (Post Viral Fatigue Syndrome), FMS (Fibromyalgia Syndrome) and Long Covid, within Worcestershire and surrounding areas.
Our MPs received Worcestershire NHS M.E./CFS and PCS Services News giving an update on the local NHS ME/CFS situation received on 3 January 2024, from Marina Townend, Specialist Occupational Therapist/Team Lead, of the ME(Myalgic Encephalomyelitis),/CFS (Chronic Fatigue Syndrome) and PCS (Post-Covid Syndrome) Services, plus NHS ME/CFS Specialist Services..
Also, it was pointed out to all our MPs that The Worcestershire M.E. Social Group’s Symptoms of ME/CFS information sheet has been updated, with the “Symptoms for Suspecting ME/CFS” Section of Myalgic Encephalomyelitis (or encephalopathy) / chronic fatigue syndrome: diagnosis and management: NICE guideline [NG206], published on 29 October 2021, now included on the reverse. .Many people have found this information sheet useful when describing how they feel, and explaining their situations to their doctors. Hopefully you will also find it useful when you contact your MP,
All-Party Parliamentary Group APPG on ME
A cross-party voice in Westminster building change for people with myalgic encephalomyelitis (ME).
The All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME) seeks to improve health, social care, education and employment opportunities for people with ME and encourage biomedical research into the cause and treatment of ME.
• Action for ME • A.P.P.G • M.E. Association • MP • Worcestershire • Worcestershire M.E. Social Group
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