News Archive 2008
Closed with 520 signatures:
Please sign the DLA-genuine E-Petition.
"We the undersigned petition the Prime Minister to protect & help people recieving DLA who are having to reapply due to Government changes in how this benefit is allocated." "People who are genuinely chronically ill/disabled & have been recieving DLA/SDA are having to do battle with their local DHS/GP's etc to reapply/appeal to have their allowances re-instated.This is causing untold stress, distress & adding to their illnessess & no doubt will cause
ultimately some poor souls death. How does the Government intend to look after these vulnerable people in our society ??"
Click on here and sign as indicated. And, remember, any number of people can sign from the one email address. end 21/02/09 posted 01.03.08
Closed with 2,486 signatures.
Invest in ME - Government Petitition - Invest in ME Conference (IiME) Please sign this petition: We the undersigned petition the Prime Minister to send the Minister of Health, Medical Research Council delegates and the Chief Medical Officer to attend the INVEST in ME Conference 29th May 2009 London.
The previous IiME conferences in 2008 attended by presenters and delegates from 13 countries, from Europe, USA, Australia, New Zealand and South Korea demonstrated that “PROVEN BIOLOGICALMARKERS & TREATMENTS FOR SOME SUB TYPES OF ME/CFS ARE ALREADY THERE!” Now the challenge is for the Chief Medical officer, the Medical Research Council and the Government to take up the challenge laid down by the conference in 2008 and commit to a national strategy of biomedical research into ME, without any conditions or provisions for enforcing the psychosocial model to be incorporated. 2009.03.08
M.E. Petition Prime Minister's Office Response, 27 February 2008. Response to the petition: "We the undersigned petition the Prime Minister to get the Health Service and medical profession to accept the WHO classification of ME/CFS as an organic neurological disorder and not as a psychosocial syndrome." 01.03.08
M.E. Petition Prime Minister's Office Response, 27 February 2008. Response to the petition: "We the undersigned petition the Prime Minister to get the Health Service and medical profession to accept the WHO classification of ME/CFS as an organic neurological disorder and not as a psychosocial syndrome." (Submitted by Konstanze Allsopp.) 01.03.07
Become involved in the NHS review
Ann Keen Parliamentary Under-Secretary of State for health services, informed the APPG (All Party Parliamentary Group on ME) meeting that she was a nurse for 25 years. She explained that during part of this time she was a community nurse visiting people with neurological conditions. Ann said that she wants to help – and a review is being produced at the moment looking at the health service and how it is delivered, including the long term conditions and how they are managed. Ann Keen told the APPG informed us that they are looking at the commissioning of long term conditions.
Have your say - 6 ways to engage in the Our NHS, our future review.
This website shows us how patients can become involved in the review. www.ournhs.nhs.uk/have-your-say (Link no longer working.)
You will see a public questionnaire which is available until 25 February:
4. Two online questionnaires, one for staff and stakeholders and one for members of the public have recently been launched. The staff and stakeholder questionnaire closes on 15 February, please click here to access it. The public questionnaire is available until 25 February, please click here to access it.
And, you can send your response to the interim report:
We want to hear the views of all those with an interest in building a better health service. Patients, staff and the public are all invited to contribute. The subject is vast, but the interim report from Lord Darzi sets out his vision of a world class NHS as:
Fair - equally available to all
Personalised - tailored care providing convenient access to services
Effective - delivering the best outcomes for patients
Safe - as safe as it possibly can be Tell us what you think of this vision and why. Send an email to: ourNHS@dh.gsi.gov.uk.
Your views will be used to inform the next stage of discussions with staff, the public and patients. All responses will be treated confidentially. We may use quotes from your responses, but these will be anonymised.
Have a look at the questionnaire, and see if there is anything you are able to say about services for people with ME, CFS or FMS in your area. and/or: Have a look at the interim report, and give your response. 09.02.08