Links
M.E. /C.F.S. Organisations
• 25% M.E. Group.
For severely affected M.E. sufferers
• AYME. (Association of Young People with M.E.) www.ayme.org.uk The Association of Young People with ME (AYME) ceased operating as a charity on Monday 3 April 2017 and Action for M.E. launched it's new Children's Services team.
• Action for M.E.
• BRAME- Blue Ribbon for the Awareness of ME. BRAME's aims are: To create awareness of ME/CFS; Raise funds for research; Show support for those affected by ME/CFS.
• #MEAction UK is a collaboration between #MEAction International’s staff and volunteer team.
• #MEAction Scotland is a collaboration between #MEAction International’s staff and Scottish volunteer team.
• The ME Trust: Charity dedicated to funding and providing individual patient treatment for people with ME/CFS.
• M.E. Association.
• Tymes Trust is a national organisation supporting children and young people with ME and their families.
Fibromyalgia Organisations
• Fibromyalgia Association UK (FMA UK) - with links to regional coordinators (for information on local groups).
The www.ukfibromyalgia.com website was created by UKWellness for FMA UK, but now FMA UK has its own site. The FMA UK site still links to some pages on the ukfibromyalgia.com site.
• Yahoo Fibromyalgia Groups - Yahoo Groups is now closed.
(UK Fibromyalgia Support - http://health.groups.yahoo.com/group/uk-fms no longer exists)
• UK Fibromyalgia - with links to some local groups.
• 25% M.E. Group.
For severely affected M.E. sufferers
• AYME. (Association of Young People with M.E.) www.ayme.org.uk The Association of Young People with ME (AYME) ceased operating as a charity on Monday 3 April 2017 and Action for M.E. launched it's new Children's Services team.
• Action for M.E.
• BRAME- Blue Ribbon for the Awareness of ME. BRAME's aims are: To create awareness of ME/CFS; Raise funds for research; Show support for those affected by ME/CFS.
• #MEAction UK is a collaboration between #MEAction International’s staff and volunteer team.
• #MEAction Scotland is a collaboration between #MEAction International’s staff and Scottish volunteer team.
• The ME Trust: Charity dedicated to funding and providing individual patient treatment for people with ME/CFS.
• M.E. Association.
• Tymes Trust is a national organisation supporting children and young people with ME and their families.
Fibromyalgia Organisations
• Fibromyalgia Association UK (FMA UK) - with links to regional coordinators (for information on local groups).
The www.ukfibromyalgia.com website was created by UKWellness for FMA UK, but now FMA UK has its own site. The FMA UK site still links to some pages on the ukfibromyalgia.com site.
• Yahoo Fibromyalgia Groups - Yahoo Groups is now closed.
(UK Fibromyalgia Support - http://health.groups.yahoo.com/group/uk-fms no longer exists)
• UK Fibromyalgia - with links to some local groups.
Central England & East Midlands
• ME/CFS Friendship and Support for Worcester and Hereford(shire) - Facebook group - 'A gentle, welcoming group to connect people with ME/CFS, Fibromyalgia, Long COVID sufferers, and any other people who come under the ”umbrella” of these types of illnesses. We would like to help create friendships across the two counties, both online and (hopefully) face to face. We would also like to create a network that can help support people with these illnesses, and their carers, by allowing us to share our experiences and advice.'
• CFS/ME & Fibromyalgia Worcestershire - Facebook group - for people in Worcestershire & surrounding areas who suffer with or have a loved one suffering with Chronic Fatigue Syndrome(CFS)/ME & Fibromyalgia. Only group members can see posts. (Note: Worcestershire M.E. Support Group was not associated with any groups, organisations or companies with a similar name.)
• Gloucester ME and You Group - meets at 43 Adelaide Street, Gloucester, between 6 and 8pm on the 4th Thursday of each month. Info: email Kerry-Anne Goss
• Gloucestershire- Fibro, ME/CFS Babes and Guys - (http://www.fibrobabes.co.uk/) https://www.facebook.com/FibroMecfsBabesGuys regular meetings in Cheltenham, Minchinhampton and Moreton-in-Marsh
• Herefordshire CFS/ME/FMS Group - Facebook page and website
• Leicestershire, Rutland & Nearby Counties - M.E. Positive East Midlands
• Nailsworth ME/CFS Support Group. The Nailsworth group (near Stroud), which welcomes members from Gloucestershire. Contact: Richard Easthope Tel: 07814 223567.
• Ross-on-Wye
• Shropshire ME Group - Facebook page and website
• Solihull & South Birmingham Support Group
• Walsall Fibro and M.E link (Myalgic Encephalomyelitis (CFS) and/or Fibromyalgia)
• West Midlands Fibromyalgia Support Groups - list on UK Fibromyalgia website. Includes Evesham, Herefordshire.
• Herefordshire F M Support -(http://www.communigate.co.uk/here/fibromyalgia/) Helpline for Herefordshire & Worcestershire: 0871750 1725
• ME/CFS Friendship and Support for Worcester and Hereford(shire) - Facebook group - 'A gentle, welcoming group to connect people with ME/CFS, Fibromyalgia, Long COVID sufferers, and any other people who come under the ”umbrella” of these types of illnesses. We would like to help create friendships across the two counties, both online and (hopefully) face to face. We would also like to create a network that can help support people with these illnesses, and their carers, by allowing us to share our experiences and advice.'
• CFS/ME & Fibromyalgia Worcestershire - Facebook group - for people in Worcestershire & surrounding areas who suffer with or have a loved one suffering with Chronic Fatigue Syndrome(CFS)/ME & Fibromyalgia. Only group members can see posts. (Note: Worcestershire M.E. Support Group was not associated with any groups, organisations or companies with a similar name.)
• Gloucester ME and You Group - meets at 43 Adelaide Street, Gloucester, between 6 and 8pm on the 4th Thursday of each month. Info: email Kerry-Anne Goss
• Gloucestershire- Fibro, ME/CFS Babes and Guys - (http://www.fibrobabes.co.uk/) https://www.facebook.com/FibroMecfsBabesGuys regular meetings in Cheltenham, Minchinhampton and Moreton-in-Marsh
• Herefordshire CFS/ME/FMS Group - Facebook page and website
• Leicestershire, Rutland & Nearby Counties - M.E. Positive East Midlands
• Nailsworth ME/CFS Support Group. The Nailsworth group (near Stroud), which welcomes members from Gloucestershire. Contact: Richard Easthope Tel: 07814 223567.
• Ross-on-Wye
• Shropshire ME Group - Facebook page and website
• Solihull & South Birmingham Support Group
• Walsall Fibro and M.E link (Myalgic Encephalomyelitis (CFS) and/or Fibromyalgia)
• West Midlands Fibromyalgia Support Groups - list on UK Fibromyalgia website. Includes Evesham, Herefordshire.
• Herefordshire F M Support -(http://www.communigate.co.uk/here/fibromyalgia/) Helpline for Herefordshire & Worcestershire: 0871750 1725
• WMMEG is an informal consortium of West Midlands local ME support groups
campaigning on issues of shared concern. The groups are: Herefordshire ME/CFS/FMS Group, Solihull & South Birmingham ME Support Group, Shropshire ME Group, Walsall & West Midlands ME Link, Warwickshire Network for ME, and Worcestershire ME Support Group.
campaigning on issues of shared concern. The groups are: Herefordshire ME/CFS/FMS Group, Solihull & South Birmingham ME Support Group, Shropshire ME Group, Walsall & West Midlands ME Link, Warwickshire Network for ME, and Worcestershire ME Support Group.
• Action for M.E. Facebook Twitter Youtube. Also ActionForMeKids facebook page.
• ME Association Facebook Twitter.
• ME Research UK Facebook.
• Tymes Trust Facebook.
Also
• CFS/ME & Fibromyalgia Worcestershire Facebook - in local support groups
• ME Association Facebook Twitter.
• ME Research UK Facebook.
• Tymes Trust Facebook.
Also
• CFS/ME & Fibromyalgia Worcestershire Facebook - in local support groups
Disability Related Sites:
• AbilityNet - national charity and provider of expertise on computing and disability in the Greater London area.
Barton Hill Advice Service - guides to claiming DLA, Attendance allowance and Incapacity benefit.
• BBC Disability News. (BBC Ouch! Archive.)
• Citizens Advice Bureau - find your nearest CAB office or look online for independent advice that is free, confidential impartial and independent.
• DIAL North Worcestershire
• DIAL South Worcestershire (previously listed link for DIAL North Worcestershire - www.nwdial.org.uk not working)
• The Disabled Living Foundation. A national UK charity providing choice for people who use equipment to live a more independent life.
• Listening Books
• National Talking Newspapers & Magazines
• REMAP - Technical Equipment for Disabled People. Custom Made Aids
For People With Disabilities.
• Skill: National Bureau for Students With Disabilities. Skill promotes opportunities for young people and adults with any kind of disability in post-16 education, training and employment across the UK.
• AbilityNet - national charity and provider of expertise on computing and disability in the Greater London area.
Barton Hill Advice Service - guides to claiming DLA, Attendance allowance and Incapacity benefit.
• BBC Disability News. (BBC Ouch! Archive.)
• Citizens Advice Bureau - find your nearest CAB office or look online for independent advice that is free, confidential impartial and independent.
• DIAL North Worcestershire
• DIAL South Worcestershire (previously listed link for DIAL North Worcestershire - www.nwdial.org.uk not working)
• The Disabled Living Foundation. A national UK charity providing choice for people who use equipment to live a more independent life.
• Listening Books
• National Talking Newspapers & Magazines
• REMAP - Technical Equipment for Disabled People. Custom Made Aids
For People With Disabilities.
• Skill: National Bureau for Students With Disabilities. Skill promotes opportunities for young people and adults with any kind of disability in post-16 education, training and employment across the UK.
Carers Sites
• Care Choices: Worcestershire County Council - Care Services Directory 2014-15' (directory via here, or search here). (Produced in association with Worcestershire County Council.
• NHS Social care and support guide - site designed to help you get the help and support you need as a carer.
• Worcestershire Association of Carers. A source of information, advice and support for all adult carers Worcestershire. See the menu on the left for their newsletter 'Caring News'.
• Worcestershire County Council Carers' Unit - see Worcestershire County Council links.
• Care Choices: Worcestershire County Council - Care Services Directory 2014-15' (directory via here, or search here). (Produced in association with Worcestershire County Council.
• NHS Social care and support guide - site designed to help you get the help and support you need as a carer.
• Worcestershire Association of Carers. A source of information, advice and support for all adult carers Worcestershire. See the menu on the left for their newsletter 'Caring News'.
• Worcestershire County Council Carers' Unit - see Worcestershire County Council links.
Other Health Sites:
• Alexander Technique - The Society of Teachers of the Alexander Technique
• British Association for Counselling & Psychotherapy (BACP) - Find a counsellor/therapist through their website.
• British Medical Journal (BMJ). General medical journal website has all articles published since January 1994. The home page includes links to the current issue and the main search page.
• Counselling Directory - 'Counselling Directory aims to be the leading service for providing counselling advice and information - connecting those in distress with the largest support network in the UK.'
• Findgroups is a directory of local groups operating within Herefordshire and Worcestershire. The directory is administered by Community First.
• Medical Research Council. A national organisation that promotes research into all areas of medical and related science with the aims of improving the health and quality of life of the UK public. The MRC is funded by the UK Government. There is a section for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
• Thyroid UK
• Alexander Technique - The Society of Teachers of the Alexander Technique
• British Association for Counselling & Psychotherapy (BACP) - Find a counsellor/therapist through their website.
• British Medical Journal (BMJ). General medical journal website has all articles published since January 1994. The home page includes links to the current issue and the main search page.
• Counselling Directory - 'Counselling Directory aims to be the leading service for providing counselling advice and information - connecting those in distress with the largest support network in the UK.'
• Findgroups is a directory of local groups operating within Herefordshire and Worcestershire. The directory is administered by Community First.
• Medical Research Council. A national organisation that promotes research into all areas of medical and related science with the aims of improving the health and quality of life of the UK public. The MRC is funded by the UK Government. There is a section for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
• Thyroid UK
Relevant Government Sites:
• All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME). APPG Members.
Previous APPG site: All-Party Parliamentary Group on ME (APPG). APPG members (as of 2010).
Report from the APPG Inquiry 2009 report into NHS Service Provision.
APPG Inquiry 2009 into NHS Service Provision.
• Special educational needs and disability (SEND).
Education for children with health needs who cannot attend school - Statutory guidance for local authorities and departmental advice for others ensuring children with health needs receive education.
• Department of Health.
• Department for Education:
Statutory guidance - Education for children with health needs who cannot attend school/Ensuring a good education for children who cannot attend school because of health needs - Local authorities must follow this guidance when carrying out their duty to arrange suitable full-time education (or part-time when appropriate for the child’s needs) for children who are unable to attend a mainstream or special school because of their health
Statutory guidance - Alternative provision/Statutory guidance for local authorities and headteachers and governing bodies of all educational settings providing alternative provision.
The link to Illness and your child's education is on the page School Life.
• Department for Work and Pensions.
• gov.uk public service information. Has a section for Disabled people and carers. This has sections: Benefits and financial help; Carers; Disability equipment and transport; Disability rights; and Work and disabled people. There is also a section called Benefits.
• gov.uk 'Finding a Job' - This page has links relating to people with disabilities.
• HM Revenue & Customs. For Child Tax Credit and Working Tax Credit. Working
Tax Credit is for some working people on low pay and some disabled people. Find out if you qualify and apply online.
• National Health Service (NHS) - with information about local services (GPs, dentists, opticians, hospitals,services), medical conditions, staying healthy etc.
• NHS Direct site - closed - 111 is the NHS non-emergency number. Call 111 when you need medical help fast but it’s not a 999 emergency
• NHS Evidence NHS Evidence is a service that enables access to authoritative clinical and non-clinical evidence and best practice through a web-based portal. It helps people from across the NHS, public health and social care sectors to make better decisions as a result. NHS Evidence is managed by the National Institute for Health and Clinical Excellence. Now closed - see this link for information.
• NICE - National Institute for Health and Clinical Excellence - see 'About M.E.' for the NICE guidelines
• NICE Clinical Knowledge Summaries a service provided by the National Institute for Health and Clinical Excellence (NICE).
• All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME). APPG Members.
Previous APPG site: All-Party Parliamentary Group on ME (APPG). APPG members (as of 2010).
Report from the APPG Inquiry 2009 report into NHS Service Provision.
APPG Inquiry 2009 into NHS Service Provision.
• Special educational needs and disability (SEND).
Education for children with health needs who cannot attend school - Statutory guidance for local authorities and departmental advice for others ensuring children with health needs receive education.
• Department of Health.
• Department for Education:
Statutory guidance - Education for children with health needs who cannot attend school/Ensuring a good education for children who cannot attend school because of health needs - Local authorities must follow this guidance when carrying out their duty to arrange suitable full-time education (or part-time when appropriate for the child’s needs) for children who are unable to attend a mainstream or special school because of their health
Statutory guidance - Alternative provision/Statutory guidance for local authorities and headteachers and governing bodies of all educational settings providing alternative provision.
The link to Illness and your child's education is on the page School Life.
• Department for Work and Pensions.
• gov.uk public service information. Has a section for Disabled people and carers. This has sections: Benefits and financial help; Carers; Disability equipment and transport; Disability rights; and Work and disabled people. There is also a section called Benefits.
• gov.uk 'Finding a Job' - This page has links relating to people with disabilities.
• HM Revenue & Customs. For Child Tax Credit and Working Tax Credit. Working
Tax Credit is for some working people on low pay and some disabled people. Find out if you qualify and apply online.
• National Health Service (NHS) - with information about local services (GPs, dentists, opticians, hospitals,services), medical conditions, staying healthy etc.
• NHS Direct site - closed - 111 is the NHS non-emergency number. Call 111 when you need medical help fast but it’s not a 999 emergency
• NHS Evidence NHS Evidence is a service that enables access to authoritative clinical and non-clinical evidence and best practice through a web-based portal. It helps people from across the NHS, public health and social care sectors to make better decisions as a result. NHS Evidence is managed by the National Institute for Health and Clinical Excellence. Now closed - see this link for information.
• NICE - National Institute for Health and Clinical Excellence - see 'About M.E.' for the NICE guidelines
• NICE Clinical Knowledge Summaries a service provided by the National Institute for Health and Clinical Excellence (NICE).
Worcestershire County Council Links
• Worcestershire County Council
• Worcestershire County Council - Adult Social Care
Please see also the Carers Sites.
• Worcestershire County Council
• Worcestershire County Council - Adult Social Care
Please see also the Carers Sites.
Local MPs (Worcestershire)
• List of MPs in the West Midlands.
• Bromsgrove - Bradley Thomas
[email protected] (Parliament.uk website)
• Droitwich and Evesham - Nigel Huddleston
[email protected] (Parliament.uk website)
• Redditch - (Mr) Chris Bloore
chris.bloore.mp@parliament.uk (Parliament.uk website)
• West Worcestershire - Dame Harriett Baldwin
[email protected] (Parliament.uk website)
• Worcester - Tom Collins
[email protected] (Parliament.uk website)
• Wyre Forest - Mark Garnier
[email protected] (Parliament.uk website)
The 'Parliament.uk biography' links include constituency and social media information.
• List of MPs in the West Midlands.
• Bromsgrove - Bradley Thomas
[email protected] (Parliament.uk website)
• Droitwich and Evesham - Nigel Huddleston
[email protected] (Parliament.uk website)
• Redditch - (Mr) Chris Bloore
chris.bloore.mp@parliament.uk (Parliament.uk website)
• West Worcestershire - Dame Harriett Baldwin
[email protected] (Parliament.uk website)
• Worcester - Tom Collins
[email protected] (Parliament.uk website)
• Wyre Forest - Mark Garnier
[email protected] (Parliament.uk website)
The 'Parliament.uk biography' links include constituency and social media information.
UK Research Organisations
• INVEST in ME community An independent group campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.) They links nationwide and also internationally.
• ME Research UK (formerly MERGE) - ME Research UK is a national UK charity funding biomedical research into Myalgic Encephalomyelitis (also known as ME/CFS). Our principal aim is to commission and fund high-quality scientific (biomedical) investigation into the causes, consequences and treatment of ME, but we also have a mission to "Energise ME Research".
• INVEST in ME community An independent group campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.) They links nationwide and also internationally.
• ME Research UK (formerly MERGE) - ME Research UK is a national UK charity funding biomedical research into Myalgic Encephalomyelitis (also known as ME/CFS). Our principal aim is to commission and fund high-quality scientific (biomedical) investigation into the causes, consequences and treatment of ME, but we also have a mission to "Energise ME Research".
Research Organisations - Other Countries
• Research1st.com - link (www.research1st.com) now goes to solvecfs.org (formerly) CFIDS Association of America
• Research1st.com - link (www.research1st.com) now goes to solvecfs.org (formerly) CFIDS Association of America
• CFIDS/Fibromyalgia Self-Help A non-profit organization that offers low-cost self-help courses over the Internet and other resources for people with CFIDS, fibromyalgia and related iIllnesses.
• The Persistent Physical Symptoms Research and Treatment Unit is a "national specialist service undertaking assessment, treatment and research regarding chronic fatigue syndrome (CFS, sometimes known as ‘ME’)". partnership between King's College London, South London and Maudsley NHS Trust and NIHR Biomedical Research Centre. Previously listed as the 'Chronic Fatigue Syndrome Research and Treatment Unit'.
• Co-Cure Archive of CFS and Fibromyalgia Information Exchange Forum mailing list. (Archive of www.co-cure.org website).
• Fibromyalgia (FMS) and Chronic Myofascial Pain (CMP)
Information for Patients and Supporters - with Devin Starlanyl. At the group's May 2005 Open Day, Sue Gordon-Saner (local Occupational Therapist at that time) used some of these handouts as well as her own material (new handouts, not used by Sue Gordon-Saner, added to the website since that time).
• Immune support.com - Fibromyalgia & Chronic Fatigue Syndrome News and Information (From the same company as Fibromyalgia support.com)
• Manuel Martínez-Lavín MD about Fibromyalgia.
• MEActionUK. A discussion group or "chat room" open for anyone who has a personal or professional interest in M.E. The website is designed to support, enhance and promote our discussion forum, and raise awareness.
• M.E. Support. This site provides information, advice and support. M.E. Support was launched by a M.E. sufferer in 2001.
• M.E. Tips website - as well as tips on living with M.E. This site has articles by Zoë Williams (author of "Zoë's Story").
• National M.E Centre in Essex - a charity working on site with a National Health Service Trust which provides necessary in-patient facilities including diagnostic evaluation and in-patient care for those patients severely affected and unable to cope with an outpatient service.
• On Eagles Wings: A Christian Perspective on M.E. By Hazel Stapleton
• Overton Studios Trust. A UK Christian Charity providing worldwide holistic online and offline production and support for sufferers from ME, CFS, PVS, CFIDS and Fibromyalgia.
• Perrin Technique 'dedicated to helping sufferers with CFS/ME'. The clinic specialises in an osteopathic approach to diagnosing and treating chronic fatigue syndrome (CFS/ME) committed to following The Perrin Technique.
• Collinge and Associates, Inc. is an independent research and consulting organization. Book by William Collinge, PhD: Recovering from Chronic Fatigue Syndrome: A Guide to Self-Empowerment (Putnam Perigee, 1993).
• Science for ME (Website:s4me.info Facebook:facebook.com/sci4me Twitter:@s4me_info)
'An independent, patient-led, international forum for people with ME/CFS & the carers, clinicians, scientists and advocates who support them'.
• Youngactiononline. This is a partner website to Tymes Trust. (Was set up before Tymes Trust's own site was created: See UK National Organisations for Tymes Trust site.)
• The Persistent Physical Symptoms Research and Treatment Unit is a "national specialist service undertaking assessment, treatment and research regarding chronic fatigue syndrome (CFS, sometimes known as ‘ME’)". partnership between King's College London, South London and Maudsley NHS Trust and NIHR Biomedical Research Centre. Previously listed as the 'Chronic Fatigue Syndrome Research and Treatment Unit'.
• Co-Cure Archive of CFS and Fibromyalgia Information Exchange Forum mailing list. (Archive of www.co-cure.org website).
• Fibromyalgia (FMS) and Chronic Myofascial Pain (CMP)
Information for Patients and Supporters - with Devin Starlanyl. At the group's May 2005 Open Day, Sue Gordon-Saner (local Occupational Therapist at that time) used some of these handouts as well as her own material (new handouts, not used by Sue Gordon-Saner, added to the website since that time).
• Immune support.com - Fibromyalgia & Chronic Fatigue Syndrome News and Information (From the same company as Fibromyalgia support.com)
• Manuel Martínez-Lavín MD about Fibromyalgia.
• MEActionUK. A discussion group or "chat room" open for anyone who has a personal or professional interest in M.E. The website is designed to support, enhance and promote our discussion forum, and raise awareness.
• M.E. Support. This site provides information, advice and support. M.E. Support was launched by a M.E. sufferer in 2001.
• M.E. Tips website - as well as tips on living with M.E. This site has articles by Zoë Williams (author of "Zoë's Story").
• National M.E Centre in Essex - a charity working on site with a National Health Service Trust which provides necessary in-patient facilities including diagnostic evaluation and in-patient care for those patients severely affected and unable to cope with an outpatient service.
• On Eagles Wings: A Christian Perspective on M.E. By Hazel Stapleton
• Overton Studios Trust. A UK Christian Charity providing worldwide holistic online and offline production and support for sufferers from ME, CFS, PVS, CFIDS and Fibromyalgia.
• Perrin Technique 'dedicated to helping sufferers with CFS/ME'. The clinic specialises in an osteopathic approach to diagnosing and treating chronic fatigue syndrome (CFS/ME) committed to following The Perrin Technique.
• Collinge and Associates, Inc. is an independent research and consulting organization. Book by William Collinge, PhD: Recovering from Chronic Fatigue Syndrome: A Guide to Self-Empowerment (Putnam Perigee, 1993).
• Science for ME (Website:s4me.info Facebook:facebook.com/sci4me Twitter:@s4me_info)
'An independent, patient-led, international forum for people with ME/CFS & the carers, clinicians, scientists and advocates who support them'.
• Youngactiononline. This is a partner website to Tymes Trust. (Was set up before Tymes Trust's own site was created: See UK National Organisations for Tymes Trust site.)
Support Groups / National Organisations Outside UK
for M.E. / Chronic Fatigue Syndrome, and also Fibromyalgia
Some Support Groups Outside UK
Belgium
• CVS Contactgroep (Myalgische Encephalomyelitis of Chronisch Vermoeidheidssyndroom)
• Vlaamse Liga voor Fibromyalgie-Patiënten VZW (VLFP): (Fibromyalgie)
Canada
• National ME/FM Action Network - there are links to the 'Canadian Consensus' (Clinical Case Definition and Guidelines for Medical Practitioners) documents from our 'About M.E.' page.
Denmark
• Fibromyalgi.dk (Fibromyalgi)
• SMEA - Life at a snail’s pace - a book for children.
• ME/CFS Foreningen er den danske patientforening for sygdommen ME/CFS (Postviralt Træthedssyndrom/ Chronic Fatigue Syndrome (CFS)/ Kronisk Træthedssyndrom)
Europe
• European ME Alliance (EMEA) - The Alliance has representatives from Belgium, Denmark, Germany, Ireland, Norway, Spain, Sweden, Switzerland and the UK.
France
• Association FibromyalgieSOS
• Association Française du SYNDROME DE FATIGUE CHRONIQUE ET DE FIBROMYALGIE C.F.S./S.P.I.D.
(Encéphalomyélite Myalgique/ Syndrome D'Épuisement Chronique/ Fatigue Syndrome D'Épuisement Chronique & La Fibromyalgie/ Syndrome Polyalgique Idiopathique Diffus)
Germany
• CFS-aktuell.de Ein Informationsportal mit aktuellen Meldungen zum Chronischen Erschöpfungssyndrom CFS. Has German translations of British documents.
• Fatigatio e.V. - Bundesverband Chronisches Erschöpfungssyndrom (CFS/CFIDS/ME)
• cfs.virtuga.com Chronisches Erschöpfungssyndrom - CFS.
• weiss.de/Fibro.htm Site with section on Fibromyalgia
Italy
• CFSItalia.it Sindrome da Affaticamento Cronico (CFS-ME)
Japan
• Japan College of Fibromyalgia Investigation (線維筋痛症 - Fibromyalgia)
• Japan ME Association (contact page) - NPO法人 筋痛性脳脊髄炎の会(ME/CFSの会)
(慢性疲労症候群 / 筋痛性脳脊髄炎 - Chronic Fatigue Syndrome / Myalgic Encephalomyelitis)
The Netherlands (Dutch language)
• F.E.S. (Fibromyalgie en Samenleving) Fibromyalgie Patienten Vereniging
• ME/CVS-Stichting Nederland
• me.startpagina.nl Many, many links
• Steungroep ME en arbeidsongeschiktheid
Norway
• Norges Myalgisk Encefalopati Forening The Norwegian ME Association
Spain
• La Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
(for Fibromyalgia and CFS/M.E.)
Sweden
• ME-föreningen Myalgisk Encefalomyelit (ME)
• Riksföreningen för ME-patienter (ME/CFS / Kroniskttrötthetssyndrom)
Switzerland
• Verein CFS Schweiz
USA
• Solve ME/CFS Initiative (SMCI) – formerly CFIDS Association of America
• National Fibromyalgia Partnership, Inc.
• The M.E. Society of America - archived via web.archive.org - has information on the Canadian Expert Consensus Panel Clinical Case Definition for ME/CFS
Belgium
• CVS Contactgroep (Myalgische Encephalomyelitis of Chronisch Vermoeidheidssyndroom)
• Vlaamse Liga voor Fibromyalgie-Patiënten VZW (VLFP): (Fibromyalgie)
Canada
• National ME/FM Action Network - there are links to the 'Canadian Consensus' (Clinical Case Definition and Guidelines for Medical Practitioners) documents from our 'About M.E.' page.
Denmark
• Fibromyalgi.dk (Fibromyalgi)
• SMEA - Life at a snail’s pace - a book for children.
• ME/CFS Foreningen er den danske patientforening for sygdommen ME/CFS (Postviralt Træthedssyndrom/ Chronic Fatigue Syndrome (CFS)/ Kronisk Træthedssyndrom)
Europe
• European ME Alliance (EMEA) - The Alliance has representatives from Belgium, Denmark, Germany, Ireland, Norway, Spain, Sweden, Switzerland and the UK.
France
• Association FibromyalgieSOS
• Association Française du SYNDROME DE FATIGUE CHRONIQUE ET DE FIBROMYALGIE C.F.S./S.P.I.D.
(Encéphalomyélite Myalgique/ Syndrome D'Épuisement Chronique/ Fatigue Syndrome D'Épuisement Chronique & La Fibromyalgie/ Syndrome Polyalgique Idiopathique Diffus)
Germany
• CFS-aktuell.de Ein Informationsportal mit aktuellen Meldungen zum Chronischen Erschöpfungssyndrom CFS. Has German translations of British documents.
• Fatigatio e.V. - Bundesverband Chronisches Erschöpfungssyndrom (CFS/CFIDS/ME)
• cfs.virtuga.com Chronisches Erschöpfungssyndrom - CFS.
• weiss.de/Fibro.htm Site with section on Fibromyalgia
Italy
• CFSItalia.it Sindrome da Affaticamento Cronico (CFS-ME)
Japan
• Japan College of Fibromyalgia Investigation (線維筋痛症 - Fibromyalgia)
• Japan ME Association (contact page) - NPO法人 筋痛性脳脊髄炎の会(ME/CFSの会)
(慢性疲労症候群 / 筋痛性脳脊髄炎 - Chronic Fatigue Syndrome / Myalgic Encephalomyelitis)
The Netherlands (Dutch language)
• F.E.S. (Fibromyalgie en Samenleving) Fibromyalgie Patienten Vereniging
• ME/CVS-Stichting Nederland
• me.startpagina.nl Many, many links
• Steungroep ME en arbeidsongeschiktheid
Norway
• Norges Myalgisk Encefalopati Forening The Norwegian ME Association
Spain
• La Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
(for Fibromyalgia and CFS/M.E.)
Sweden
• ME-föreningen Myalgisk Encefalomyelit (ME)
• Riksföreningen för ME-patienter (ME/CFS / Kroniskttrötthetssyndrom)
Switzerland
• Verein CFS Schweiz
USA
• Solve ME/CFS Initiative (SMCI) – formerly CFIDS Association of America
• National Fibromyalgia Partnership, Inc.
• The M.E. Society of America - archived via web.archive.org - has information on the Canadian Expert Consensus Panel Clinical Case Definition for ME/CFS
• ASDA recipes.
• BBC food site. Recipes. Advanced search has gluten/dairy free/seasonal etc options. Also browse recipes from a particular food programme.
• Doves Farm: Gluten Free recipes and other recipes
• ITV This Morning
• Morrisons recipes
• Sainsburys food and drink pages
• Tesco recipes (Tesco realfood)
• Waitrose.com recipes pages.
• Woman and Home recipes
• BBC food site. Recipes. Advanced search has gluten/dairy free/seasonal etc options. Also browse recipes from a particular food programme.
• Doves Farm: Gluten Free recipes and other recipes
• ITV This Morning
• Morrisons recipes
• Sainsburys food and drink pages
• Tesco recipes (Tesco realfood)
• Waitrose.com recipes pages.
• Woman and Home recipes
Go to worcsmegroup blog
• 25% M.E. Group
• Action for ME
• A.P.P.G
• B.B.C.
• Benefits
• Carers
• Children
• Coronavirus (COVID 19)
• DecodeME
• Fibromyalgia
• Forward ME
• Fundraising
• Government U.K.
• Hereford
• Local News
• Malvern
• #MEAction
• M.E. Association
• Medical Research Council
• Meetings
• MERUK
• MP
• National Newspapers
• N.H.S.
• N.I.C.E.
• Parliament U.K.
• Post COVID Syndrome (Long COVID)
• Research
• Sleep
• The ME Trust
• Tymes Trust
• Worcester City Council
• Worcestershire
• Worcestershire County Council
• Worcestershire M.E. Social Group
• Worcestershire M.E. Support Group
• Action for ME
• A.P.P.G
• B.B.C.
• Benefits
• Carers
• Children
• Coronavirus (COVID 19)
• DecodeME
• Fibromyalgia
• Forward ME
• Fundraising
• Government U.K.
• Hereford
• Local News
• Malvern
• #MEAction
• M.E. Association
• Medical Research Council
• Meetings
• MERUK
• MP
• National Newspapers
• N.H.S.
• N.I.C.E.
• Parliament U.K.
• Post COVID Syndrome (Long COVID)
• Research
• Sleep
• The ME Trust
• Tymes Trust
• Worcester City Council
• Worcestershire
• Worcestershire County Council
• Worcestershire M.E. Social Group
• Worcestershire M.E. Support Group
