The Worcestershire ME Support Group’s "Symptoms of M.E./CFS" gives symptoms taken from ‘Living with M.E.’ by Dr Charles Shepherd, ‘M.E. - How to Live with It’ by Dr Anne MacIntyre, and ‘The Disease of a Thousand Names’ by Dr David Bell. The percentages shown represent M.E. patients displaying that particular symptom. Many people with a diagnosis of ME, and/or ME/CFS, find this helpful when explaining their symptoms to their doctor.
| Symptoms Of CFS/ME (pdf) |
Worcestershire ME Support Group members' helpful and unhelpful responses.
The Worcestershire ME Support Group received members’ helpful and unhelpful responses back in 2003/2004.
The Worcestershire ME Support Group received members’ helpful and unhelpful responses back in 2003/2004.
| Members' helpful and unhelpful responses. |
This information may still be helpful for people trying to understand ME/CFS, and how some people can be helped. The information is taken from completed membership questionnaires in the year ending August 2004.
There is a Group Disclaimer on the last page -
"Views and opinions expressed in this document are the personal beliefs of the individual contributor. They may not represent the feelings of all members, and are not necessarily those of the Worcestershire M.E. Support Group.
The committee and Worcestershire M.E. Support Group do not endorse or recommend any particular treatment, therapy or practitioner. Practitioners and treatments mentioned are for information only. Any treatment, tests or remedies mentioned may be tried at your own risk, but preferably after consultation with your GP."
The Group on Scientific Research into Myalgic Encephalomyelitis (GRSME) - Chaired by Dr Ian Gibson MP for Norwich North from 1997 to 2009, and Vice Chair, Dr Richard Taylor, MP for Wyre Forest from 2001 to 2010.
In 2006 the Worcestershire ME Support Group’s Presentation at the Gibson Enquiry included a reference to the members’ helpful and unhelpful responses.
"A couple of years ago our Group asked what members found helpful and what had been unhelpful. The replies showed how much money and time is used going from one complementary therapy to another trying to find something that will relieve some of their many symptoms. They also try various supplements without knowing which would be of benefit to them. All this is costing people hundreds of pounds, and yet the majority are living on a very reduced income, or benefits."
Full presentation - http://www.erythos.com/gibsonenquiry/PresDocs.html
There is a Group Disclaimer on the last page -
"Views and opinions expressed in this document are the personal beliefs of the individual contributor. They may not represent the feelings of all members, and are not necessarily those of the Worcestershire M.E. Support Group.
The committee and Worcestershire M.E. Support Group do not endorse or recommend any particular treatment, therapy or practitioner. Practitioners and treatments mentioned are for information only. Any treatment, tests or remedies mentioned may be tried at your own risk, but preferably after consultation with your GP."
The Group on Scientific Research into Myalgic Encephalomyelitis (GRSME) - Chaired by Dr Ian Gibson MP for Norwich North from 1997 to 2009, and Vice Chair, Dr Richard Taylor, MP for Wyre Forest from 2001 to 2010.
In 2006 the Worcestershire ME Support Group’s Presentation at the Gibson Enquiry included a reference to the members’ helpful and unhelpful responses.
"A couple of years ago our Group asked what members found helpful and what had been unhelpful. The replies showed how much money and time is used going from one complementary therapy to another trying to find something that will relieve some of their many symptoms. They also try various supplements without knowing which would be of benefit to them. All this is costing people hundreds of pounds, and yet the majority are living on a very reduced income, or benefits."
Full presentation - http://www.erythos.com/gibsonenquiry/PresDocs.html
RSS Feed
