ME Essential Autumn 2016 (ME Association [MEA] magazine)
Letter from Warwick B Davis, Worcestershire ME Support Group,
I have suffered from ME for over 20 years and from the first months I have constantly heard or read that there are around 250,000 sufferers in the UK. Why still this figure?
Are there no new sufferers? Do people not pass away?
Recently the press reported that one in 50 16-year-olds had some level of ME. This is incredible. As an ex-teacher, I always felt that there was something else other than laziness in some pupils not performing.
If 250,000 continually gets quoted, the public do not understand how debilitating ME can be and the serious impact this illness has on our lives. As it is not a notifiable illness, it is difficult to know exact numbers.
Neither the public nor the NHS will ever take us seriously if the figures remain the same year after year.
And how did it come about in the first place?