The ME Association’s (MEA) article about their new leaflet summarises all the key clinical, research and political evidence supporting a neurological classification for myalgic encephalopathy/encephalomyelitis (M.E.).

A very useful leaflet, at the time when the Worcestershire Health & Care NHS Trust are requesting your opinions and feelings to help develop their future local Neurology Rehabilitation Care Services.

The MEA article includes two free factsheets - an overview of M.E., and a summary of the key research evidence of all the abnormalities found in M.E.
The MEA explain that Neurological disorders are diseases of the nervous system, which include structural, biochemical or electrical abnormalities in the brain, spinal cord or peripheral nerves that can result in a range of symptoms.

In this leaflet, Dr Charles Shepherd summarises all the key clinical, research and political evidence that supports the World Health Organisation’s classification and UK Government’s recognition of ME/CFS as a neurological disease.

The leaflet has been produced to support anyone who needs help understanding or conveying the neurological basis for the illness. It was fully revised and expanded in January 2020.

Tuesday 3rd March - All-Party Parliamentary Group (APPG) on ME Meeting.

Carol Monaghan (MP for Glasgow North-West) has re-established a new All-Party Parliamentary Group (APPG) on ME. 

Biomedical research discussion at the next meeting on Tuesday 3rd March, from 1- 2 pm.
 
The March APPG on ME meeting will provide an opportunity for MPs to learn about issues and developments in biomedical research and funding through a series of short presentations and a Q&A discussion.
There will several specialist guest speakers who will discuss their research: Professor Julia Newton from Newcastle University, Professor Chris Ponting from the University of Edinburgh and a representative from the UK ME Biobank.

Contact your local MP, and explain how important this meeting is to you.
 
Action for ME are asking - Will your MP attend the APPG for M.E. in March? 

The ME Association and #MEAction give a joint statement, explaining what’s next for the APPG on ME, and giving a list of all MPs who attended the first meeting in January.  

Background:

• 2019 Parliamentary briefing paper on key issues facing people with ME.
• Commons M.E. Debate, 24 January. Transcripts, YouTube and Reports.

Worcestershire Health & Care NHS Trust would like to hear your opinions and feelings to help develop their future local Neurology Rehabilitation Care Services.

How to get involved - the NHS Trust are holding events in Worcester and Bromsgrove, where you can hear what they do now, and give your views on how things could be improved.
Events:

• 26 February 2020, 2.00 to 4.00 pm, St Peter’s Baptist Church, Eden Close, Worcester, WR5 3TZ
• 5 March 2020, 2.00 to 4.00 pm, BHI Parkside, Stourbridge Road, Bromsgrove, B61 0AZ

For more information or to reserve your place - email [email protected] or call 01905 681495

The Worcestershire Health & Care NHS Trust want local people who have experience of neurological conditions to help them develop a better, more equitable service for future patients and families/carers.
Share this information, and help publicise the Neurology Rehabilitation Care Services future development with their poster (see below).