DecodeME the ME/CFS Study - We aim to find genetic causes of why people become ill with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) with our ground-breaking research.
 
You’re invited to the next DecodeME webinar.
This webinar will be a chance to hear updates about the study's progress and have your questions answered.  It’s on Friday 15th March 02:00pm (GMT) on Zoom and Facebook Live. 
 
There are only 500 spots to watch the webinar on Zoom on the day.  Don't worry though, if you don't manage to get a place this time (this can happen even if you registered in advance), you can also watch on Facebook live via our Facebook page, or watch the recording when it becomes available on our website.
 
Friday's webinar will be a chance to hear updates on the project including our recently announced project extension.  Join Chris Ponting, Sonya Chowdhury and Andy Devereux-Cooke from the DecodeME team to hear the latest news and what's next for the project.  There will also be a Q&A session at the end.  Send us your questions ahead of the webinar.  If you can’t make the webinar, don’t worry. There will be a recording available afterwards on our website.

Also, see our previous DecodeME articles.
 
For further background information, including information from Action for ME, The Medical Research Council, the National Institute for Health Research, the ME Association, and press articles go to our group’s previous •  DecodeME  blogs  These include -
 
• DecodeME the ME/CFS Study August 2023 Newsletter 
• ME/CFS Biomedical Partnership - Genetics Research - DecodeME UPDATE (2 September) ;
• ME/CFS Biomedical Partnership - Genetics Research. ;
• Biomedical Genetics Research: The ME/CFS Biomedical Partnership.

•  DecodeME  •  Research 

DecodeME
We aim to find genetic causes of why people become ill with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) with our ground-breaking research.
 
March 2024 Newsletter update from the DecodeME Study
We have an important project update to share with you.  DecodeME participants have done a great job completing questionnaires and returning spit samples. But the next step - extraction of DNA at UK Biocentre - has faced operational and capacity issues.
 
We have been working hard with UK Biocentre to resolve as many of these issues as possible and to avoid delays. While some issues were mitigated, it became obvious that we simply would not have enough time to perform all necessary data analyses by August 2024, the planned end date.
 
We discussed this situation with both our Scientific Advisory Board and funders. They agreed with our assessment and funding has been awarded to extend the project until August 2025. This will give us sufficient time to finish the project.
 
We are acutely aware of the urgency to deliver the study results as soon as possible and we continue to work as hard as we can to fulfill these goals. We remain fully committed to completing this research to the highest possible scientific standards, ensuring that our findings are as robust as possible.  To find out more, please read our blog here.  
 
Warmest wishes,
The DecodeME Team
DecodeME Partnership, 
42 Temple Street, Keynsham, BS31 1EH,,
www.decodeme.org.uk

Also, see our previous DecodeME articles.
 
For further background information, including information from Action for ME, The Medical Research Council, the National Institute for Health Research, the ME Association, and press articles go to our group’s previous •  DecodeME  blogs  These include -
 
• DecodeME the ME/CFS Study August 2023 Newsletter 
• ME/CFS Biomedical Partnership - Genetics Research - DecodeME UPDATE (2 September) ;
• ME/CFS Biomedical Partnership - Genetics Research. ;
• Biomedical Genetics Research: The ME/CFS Biomedical Partnership.

•  DecodeME  •  Research 

Please join us, at our Afternoon Café Meeting on Wednesday, 13 March, from 2.00 - 3.30 pm, in the Next Café, above the Next store at the Elgar Retail Park, Blackpole, Worcester, WR3 8HP.  (There is a lift and escalator in the store, plus plenty of parking, including blue badge spaces near the main entrance.)  
 
All people with M.E., CFS, FMS, Long Covid, and their carers, friends and relatives, are welcome at all Worcestershire M.E. Social Group gatherings - please join us whenever it suits you.
(*should there be snow on this date it will be cancelled).
 
Future Afternoon Café Meetings will also be on the 2nd Wednesday of each month, from 2.00 - 3.30 pm, at the Next Café.  Further information with all 2024 dates listed is available on our Meetings page.

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