Carers UK, and people with ME (pwME)

The following was received on LocalME yesterday, and subsequently also permission to forward it was given… … … …

Hi all,

Yesterday I did an interview with ITV Wales for Carers UK to highlight the Text Santa programme on ITV on Friday 21/12 which aims to raise funds for 6 nominated charities.

Please help raise as much money as you can for Text Santa as Carers UK supports carers of pwme too.

This is the piece Carers UK have written up on their website about me and us. I will post the link to the tv interview when it becomes available.

www.carersuk.org/get-involved/text-santa-2012/text-santa-carers/item/2903\-sylvia-penny

Sylvia

As promised here is the link to the interview.
www.itv.com/news/wales/update/2012-12-18/itvs-text-santa-appeal-speaks-to\-the-carers/

Following on the ME Association (MEA) website:

Sylvia Penny on the life of a full-time carer | ITV Wales | December 2012 by Tony Britton on December 19, 2012
http://www.meassociation.org.uk/?p=13989

Sylvia Penny, from the Wales Association of M.E. and CFS, talks to ITV Wales about what it’s like to be a full-time carer (two minute video):

www.itv.com/news/wales/update/2012-12-18/itvs-text-santa-appeal-speaks-to-the-carers/

Following on the Action for ME (AfME) website:

20 December 2012
www.actionforme.org.uk/get-informed/news/daily-press-summary/daily-press-summary-20122012

Being a full-time carer
Sylvia Penny talks about being a full-time carer for her son David, who has dyspraxia and Asperger’s syndrome; and her daughter Michelle, who has severe M.E. She also cares for her elderly mum. Carers Wales says carers need to be able to talk to people who understand their situation, and access services that enable them to take time off.
ITV News, online
18/12/12

BBC Radio 4 is running a series on Care in the UK see: http://www.bbc.co.uk/radio4/youandyours/careintheuk/index.shtml

Have you anything you would like to add to:
Radio 4 message boards > Care in the UK > Carers of people with ME, CFS, and FMS
at:
http://www.bbc.co.uk/dna/mbradio4/F9042615?thread=4963712     Radio 4 message boards > Care in the UK > Welcome to Care in the UK
Welcome to the Care in the UK message board. Throughout January, You and Yours, along with Woman’s Hour, will be examining social care – the care of elderly and disabled people – which has been described as one of the biggest unresolved issues of our time. As more of us live longer we're starting to realise that longevity comes at a price. It has been compared in scale with the pensions crisis.

On Monday January 7th at midday You and Yours will be launching the Care in the UK season with a special programme. We’ll be talking to the key figures including the minister Ivan Lewis, Niall Dickson of the King’s Fund thinktank and social services spokesperson John Dixon.

On January 14th we will be unveilling a Care Calculator on this website and a questionnaire which will help you to contribute your thoughts to the national debate surrounding how social care is provided and funded.

During the month we will be looking at many different aspects of social care including the history of care, alternatives to the conventional residential care home, how other countries organise their social care and how care businesses have changed over the last 20 years.

You will also be able to hear Tony Robinson and actress Laura Linney talk about their own experiences of social care.

On this message board you will be able to discuss the issues you hear on the programmes. Feel free to share your feelings, offer support and describe your experiences.
Victoria, You and Yours Team
   

Jill Pigott 
Patient/Carer Representative 
Worcestershire M.E. Support Group