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M.E.: Treatment and Research - MPs’ 3 hour debate, 21 June

27/6/2018

 
Full debate - available to watch on Youtube, and read the full Hansard transcript.

Also, the complete Ministerial response from a ME Association article - the Parliamentary debate on M.E. treatment and research.

Since the debate - Reports from the ME Association (MEA) and Action for ME (AfME):

ME Association: MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018
MPs demanded more funding for research into a cruel “death sentence” disease affecting 250,000 people in the UK - and the immediate end to NHS-recommended treatments that are making patients worse.

Action for ME: Parliamentary debate on M.E. - our summary June 21, 2018
“At the moment M.E. receives practically no funding in terms of biomedical research…the treatments that are currently available are often more damaging to the person than no treatments at all.”

Encourage your MP to attend the June 21st debate on M.E.

12/6/2018

 
A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m.

The ME Association, #MEActionUK, Action for ME and The ME Trust, jointly produced a parliamentary briefing for use by MPs in the debate.  This briefing is intended as a comprehensive resource for MPs, to provide any extra information required to supplement the concerns raised by their constituents.

Encourage your MP to attend - forward the Parliamentary Briefing, and describe how you are affected by M.E.   Scroll down here for all Worcestershire MPs’ contact information.

Further information from -
#MEAction:-
UK: Urge your MP to attend the 21st June debate on ME.
The ME Association:-  
Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018.
NICE decides to Fully Update its guideline on ME/CFS! | 20 September 2017 
Action for ME:- 
Westminster treatment and research debate confirmed.   -
The Canary
An MP is calling for a debate into one of the ‘biggest medical scandals’ of the 21st century.
The truth about NHS research funding that should shame the government.  

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