15,180 people signed the ME Association (MEA) national petition, addressed to Sir Andrew Dillon, Chief Executive, NICE, calling for a complete review of the NICE guideline for ME/CFS. This included many Worcestershire people who signed, many of whom gave their comments.
The 2007 NICE Clinical Guideline has been checked by NICE for the need for an update and the NICE CFS/ME Guideline Registered Stakeholders were invited to comment on NICE’s surveillance consultation - they were given 14 days, from 10 - 24 July to voice their concerns.
LocalME (an online forum for local ME group contacts across the UK) responded - they had managed to receive an extension until 31 July. The MEA announced Stakeholder submissions from Action for ME (AfME), Forward-ME, Invest in ME Research, LocalME, the MEA, Tymes Trust, and many more.
National Petition -
ME Association petition represents biggest expression of no confidence in a NICE guideline ever recorded | 26 July 2017
www.meassociation.org.uk/2017/07/me-association-petition-represents-biggest-expression-of-no-confidence-in-a-nice-guideline-ever-recorded-26-july-2017/
Comments -
www.meassociation.org.uk/wp-content/uploads/MEA-Petition-Comments-24.07.17-1.pdf
NICE surveillance consultation -
www.nice.org.uk/guidance/CG53/documents/surveillance-review-proposal
Stakeholder submissions -
www.meassociation.org.uk/2017/07/the-nice-guideline-consultation-uk-stakeholder-submissions-27-july-2017/
LocalME -
see attached file below
The 2007 NICE Clinical Guideline has been checked by NICE for the need for an update and the NICE CFS/ME Guideline Registered Stakeholders were invited to comment on NICE’s surveillance consultation - they were given 14 days, from 10 - 24 July to voice their concerns.
LocalME (an online forum for local ME group contacts across the UK) responded - they had managed to receive an extension until 31 July. The MEA announced Stakeholder submissions from Action for ME (AfME), Forward-ME, Invest in ME Research, LocalME, the MEA, Tymes Trust, and many more.
National Petition -
ME Association petition represents biggest expression of no confidence in a NICE guideline ever recorded | 26 July 2017
www.meassociation.org.uk/2017/07/me-association-petition-represents-biggest-expression-of-no-confidence-in-a-nice-guideline-ever-recorded-26-july-2017/
Comments -
www.meassociation.org.uk/wp-content/uploads/MEA-Petition-Comments-24.07.17-1.pdf
NICE surveillance consultation -
www.nice.org.uk/guidance/CG53/documents/surveillance-review-proposal
Stakeholder submissions -
www.meassociation.org.uk/2017/07/the-nice-guideline-consultation-uk-stakeholder-submissions-27-july-2017/
LocalME -
see attached file below
| Local ME response 28.7 (Nice Guideline 2017.07) |
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