We aim to find genetic causes of why people become ill with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) with our ground-breaking research.
November 2023 Newsletter update from the DecodeME Study
We have now closed all participant recruitment and would like to thank everyone who has given their precious time and energy to become a participant in DecodeME.
Over 26,000 people have signed up and completed their questionnaire, and over 21,000 have been invited to provide a DNA sample. This is an amazing achievement. Watch our video message here.
We are absolutely delighted to be moving forward to the next stage with such a strong cohort of participants. Thank you to everyone for your extraordinary participation!
As we now move on to the next stage of the study, our focus is on getting as many spit kits back as possible. We currently have around 4,000 spit kits that have been sent out and not yet returned. If you have received your kit, but have not yet returned it, please do so by the 31 January 2024. As there can be unpredictable delays with the post, especially over the holiday season, please post your kit back to us as soon as possible and before this date, if you can.
If you have questions about returning your sample, then our FAQ page has a number of answers that might prove useful. Each sample returned will strengthen the results of our research, so we really appreciate every kit sent back.
Finally, for a fuller update on the study and what to expect next, you can watch our most recent webinar here. Subtitles, a transcript and an audio-only file are available.
Thank you for supporting the study,
we couldn’t do this without you!
42 Temple Street, Keynsham, BS31 1EH,,
Also, see our previous DecodeME articles.
For further background information, including information from Action for ME, The Medical Research Council, the National Institute for Health Research, the ME Association, and press articles go to our group’s previous • DecodeME blogs These include -
• DecodeME the ME/CFS Study August 2023 Newsletter
• ME/CFS Biomedical Partnership - Genetics Research - DecodeME UPDATE (2 September) ;
• ME/CFS Biomedical Partnership - Genetics Research. ;
• Biomedical Genetics Research: The ME/CFS Biomedical Partnership.
• DecodeME • Research