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Independent re-analysis of the PACE Trial

26/4/2017

 
Whole independent re-analysis of the PACE Trial recovery paper -
Now available outside of paywall.

“Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy?  A critical commentary and preliminary re-analysis of the PACE trial” 


Conclusion - “The claim that patients can recover as a result of CBT and GET is not justified by the data, and is highly misleading to clinicians and patients considering these treatments.”

Explanatory PACE Trial recovery paper articles
(Pacing, Activity, and Cognitive behavioural therapy, a randomised Evaluation)
-
‘How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma’
‘Yet more research shows chronic fatigue syndrome is real. When will health services catch up?’
‘Getting it wrong on Chronic Fatigue Syndrome’
‘Call for retraction of PACE publication’

Social Group’s Lunches and Afternoon Teas

22/4/2017

 
Our first Afternoon Tea will be Thursday 11 May, during M.E. Awareness Week.  Join us for an afternoon cuppa and chat, on Thursday 11 May, from 2.30 to 4.00 pm, at the Apple Barn Restaurant at Evesham Garden Centre, The Valley, Evesham. 

Help raise awareness during ME Awareness Week (May 8 to 14) by Going Blue in Evesham. 

Lunches continue - please see meetings page for all Summer Teas, and Lunches throughout the year.

Birmingham Millions Missing Protest - Friday 12 May

19/4/2017

 
The Walsall Fibro and ME Link and Solihull & South Birmingham ME Support Group are organising the Birmingham Millions Missing Protest, taking place on Friday 12 May at St Philip’s Cathedral Square, Colmore Row, B3 2QB, from 1.00 pm - 5.00 pm.

People from Worcestershire are welcome at this event, which marks the 25th International ME Awareness Day.

Anyone from Worcestershire who would like to attend is most welcome for as short or as long a time as they can manage - bring family and friends to swell the numbers too.  Bring shoes, labelled ‘millionsmissing’.  Also, anyone who would like to send shoes and a message, please email for further details.

Updates appear on the event’s facebook.
  • Facebook Group: Millions Missing Birmingham UK (need to login)
  • Facebook Event: Millions Missing - Birmingham (don't need to login to view)

  • Evening Standard report of the 2016 Millions Missing Protest

Tom Whittingham running the London Marathon on 23 April 2017 for ME Research UK

18/4/2017

 
Please support the late Betty Hughes’ grandson - Tom Whittingham. 
T
om, who is one of the ME Research UK’s Ambassadors, is running in the London Marathon on 23 April.

Marathon fundraising page.

Announcement on ME Research UK website.
Announcement on meaction.net.

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