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5th Annual CFS/ME Research Collaborative (CMRC) Conference, 19 and 20 September 2018.

16/11/2018

 
Reports available to download, and presentations to watch on YouTube:
The ME Association (MEA) 24 page Summary Report available to download,  and the MEA article describing the 2 day research conference.
Action for ME (AfME) article -  with presentations to watch on AfME YouTube channel.
Statement from the members of the CureME Team who presented at the UK CFS/ME Research Collaborative Conference in Bristol.

The aim of the CFS/ME Research Collaborative (CMRC) is to promote the discovery of the biological mechanisms that underpin CFS/ME, which will drive the development of targeted treatments.   The MEA and AfME give background on the CFS/ME Research Collaborative.
 
Recent research announcements:
AfME’s latest research article.
MEA’s November Summary of ME/CFS Published Research.
Includes the 84 page ME Association Index of Published ME/CFS Research, available to download.
Completed research studies and reviews funded by ME Research UK, [reviews available from 2000 to 2018].

ME Association website survey: Do you have a Healthcare Plan?

2/11/2018

 
Do you have a Healthcare Plan?  Please respond on the ME Association Website Survey: 
The ME Association (MEA) explain why they are asking about healthcare plans.  This survey will help the MEA respond on behalf of pwME during the construction of the new NICE Guideline.

The MEA November website survey -  is half-way down on the home page of the MEA website. The MEA article includes Care Plan information from the current NICE Guideline NICE Guideline ME/CFS: General Principles of Care.
“The healthcare professional responsible for your care should make a care plan with you, which is looked at and kept up to date every time you see a healthcare professional about your CFS/ME.”

“It should include the symptoms and history of your condition, plans of treatments and self-help techniques you may be using, information and support needs, plans for work or education, and contact details of the healthcare professionals caring for you.”

“Your care should be given in ways that are suitable for you. This may mean having some tests or treatments at home or getting support and advice by telephone or email.”

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