Action for ME (AfME) and the ME Association (MEA) give their immediate reactions. 
 
AfME reaction includes thoughts trom Sonya Chowdhury, AfME Chief Executive -
 
The resignation of Sajid Javid as Secretary of State -
July 06, 2022
Last night news broke that the Secretary of State for Health and Social Care Sajid Javid had resigned from his role. This has left people with M.E. feeling concerned because Mr Javid had initiated the development of a much-needed delivery plan for M.E.
 
Our Chief Executive Sonya Chowdhury who is working collaboratively with the Government shared her thoughts:  “I'm pleased to continue working with such a dedicated & personally committed team of civil servants across the Department of Health and Social Care and other organisations to drive work forward with the M.E. delivery plan and continue to make a real difference for all our community.”
 
Since the release of the written ministerial statement in May meetings have been held covering patient experience, education, training and research into cause and treatment of M.E./CFS including a roundtable that Sonya attended at the end of June.
We would like to welcome the new Secretary of State for Health and Social Care Steve Barclay and look forward to continuing this vital work alongside him at the other members of the Department.
 
 
MEA reaction includes thoughts trom Dr Charles Shepherd, Hon. MEA Medical Adviser
Sajid Javid, Secretary of State for Health and Social Care, resigns and is replaced by Stephen Barclay
July 6, 2022
 
The resignation of Sajid Javid, Secretary of State for Health and Social Security, is clearly bad news given his genuine concern and commitment to improve the care of people with ME/CFS and research into the cause and treatment of ME/CFS
 
Fortunately, the three ministerial groups covering patient experience, education and training, and research into cause and treatment of ME/CFS have all been set up and had their first meetings.  I attended the first meeting of the research group last week.
So I assume that these initiatives will all continue as planned under the new Secretary of State - the Rt Hon Stephen Barclay MP.
Dr Charles Shepherd, Hon. Medical Adviser ME Association
 
 
For further information, see our recent blog - Sajid Javid ‘Rethinking ME’ after young relative’s battles  including -  Rethinking ME – report launch
 
At the end of April our Worcestershire Social Group Blog announced - Decommissioned - ME/CFS Service at Worcestershire Acute Hospital .  If this has affected you, or you have any other concerns, inform your MP of your situation.
 
The Worcestershire M.E. Social Group’s website gives links to Social Media sites which maybe helpful to many people to discuss situations, or just to look and read other people’s postings.
 

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 See ME Awareness Week news items on M.E./Fibromyalgia Charities websites  - see 'M.E. /C.F.S. Organisations', and 'UK Research Organisations' websites links and become involved where you can.
 
International May 12th Awareness Day
This year, 2022, marks the 30th anniversary of International May 12th Awareness Day. The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases (no longer active). Tom Hennessy was based in the USA but understood that it needed to be an international event; he designated the 12th of May 1992 as the International Awareness Day for the spectrum of illnesses he called Chronic Immunological and Neurological Diseases (CIND).
 
May 12 was chosen as it coincided with the birth date of Florence Nightingale, the celebrated English social reformer and statistician, and the founder of modern nursing. Nightingale became chronically ill in her mid-thirties after returning from the Crimean War; the M.E.-like illness often left her bedridden during the last 50 years of her life. You will find a more detailed account in A Short History of Myalgic Encephalomyelitis.

The ME Association ask you to -
Make a wish and join in ME Awareness Week 2022
May 8, 2022
ME Awareness Week starts tomorrow, Monday 9th May, and continues through to a fantastic finale on Sunday, 15th May. During the week, we will be asking you to make frequent use of the hashtag #JustOneWish.
It's the thirtieth anniversary of the event and – with Long Covid rampant round the world – the number of people being diagnosed with ME/CFS is growing exponentially day-by-day.
There are said to be 1.7m people in the UK alone who, months after being infected, still have symptoms of Long Covid - which in so many respects looks just like ME/CFS.
Please do something to help the ME Association meet the challenge of supporting these ever-growing numbers now and in the years ahead.
It's not too late to organise your own fundraiser to support us during ME Awareness Week. Download this little leaflet (pdf) which has lots of ideas for easy-to-arrange fundraising events.
 
Use the hashtag #JustOneWish whenever you can during the week.
The wish is what we have all been crying out for over the years - safe and effective treatments that make people with ME/CFS better.
With our links into the research community, the ME Association is well placed to generate funds that leverage new and promising biomedical research.
In the run-up to the week, we shall be highlighting lots of exciting fundraising going on all round the UK and putting up reminders about the big job of raising awareness of ME/CFS that still remains to be done.
This is your week. It's also the best time of the year to show that you are proud of your achievements and tell the world you're not yet prepared to be forgotten. Please make use of it.
Tony Britton, Fundraising and PR Manager
tony.britton@meassociation.org.uk Mob: 07946 760 811

Last week, Action for ME launched their new five-year strategy, Shaping our future together. -
Shaping our future together: our call for a national strategy for M.E.
May 05, 2022
As we approach the World ME Day on 12 May, we launch Action for M.E.’s new five-year strategy, Shaping our future together. We also have a simple-text version.  Developed in partnership with people with M.E. of all ages, carers and professionals, it sets out four ambitious outcomes which we believe will help us end the decades of ignorance, injustice and neglect faced by people with M.E.
 
Sonya Chowdhury, CEO, Action for M.E. says:
We are calling for a national strategy for M.E. led by the UK Government with a clear implementation plan and significant investment.  Action for M.E. alongside many from the M.E. community work hard behind the scenes to advocate for people with M.E. at all levels, and we hope that we will soon see a long overdue commitment to end the ignorance, injustice and neglect experienced by children and adults with M.E.  We will not stop until this happens.

Sunday 15 May
ME Research UK (MERUK) are publicising -
Blue Sunday- The Tea Party for M.E.
22 April 2022
Anna Redshaw’s ‘Blue Sunday’ Tea Party For M.E. in aid of various ME charities (including ME Research UK) will be held on Sunday 15th May 2022.
As Anna explains
On Sunday 15th May, people from all over the world will meet up online to chat and leave comments on each other’s posts. While doing so they’ll be enjoying tea and cake (or whatever their delicate digestive systems can manage) and donating what they can to M.E. charities and causes.
We are so often excluded from events because our symptoms can make it so difficult for us to leave the house, let alone spend an hour or two at an event. That’s why the Tea Party For M.E. has always had an online/virtual element running alongside any in-person tea parties.
 
The premise is simple.

• Wear something blue (pyjamas count!)
• Dig out your best cups and saucers
• Bake or buy your favourite cake
• Post a photo of you little tea party set-up to social media
• Invite your family and friends to enjoy tea and cake with you, in person or via video call
• Donate the price you’d pay in a café
• Connect with others online who are doing the same, by commenting on their photos and posts
• Feel a part of the in-person tea party as Anna uploads photos and videos from the event she host every ‘Blue Sunday’.

You can share your photos in the Blue Sunday 2022 Facebook Event or on Twitter and/or Instagram using the hashtags #TeaPartyForME2022 #BlueSunday2022
You can donate to ME Research UK directly via JustGiving.

Our local ME/CFS Service
Last month, we publicised the ME Association’s (MEA) request for news https://worcsmegroup.weebly.com/blog/me-awareness-week-2022-9-15-may about your local M/CFS Specialist Service and/or Long Covid Clinic.
Since then, we announced that the ME/CFS Service at Worcestershire Acute Hospital had been decommissioned.
 
How has this affected you?  Is there anything you would like to share, either on this website, or with the MEA?  Just get in touch 


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Today (27 April 2022), the Worcestershire ME Social Group received a copy of this notification (pdf).
 
We understand this letter was sent from Dr M Ling Consultant Physician in Infectious Diseases, Worcestershire Acute Hospitals NHS Trust, to Worcestershire GPs in April 2021.  The letter explained that “the chronic fatigue service run by infectious diseases with consultant input has been decommissioned last year at Worcestershire Acute Hospital, therefore we are unable to take patients for fibromyalgia or chronic fatigue syndrome.”
 
However, Worcestershire GPs have been informed that
“at the time of writing this there is a therapy team with occupational therapists in Worcestershire, care of Malvern Community Hospital, who can deal with treatment of chronic fatigue syndrome and many rheumatology services will have physiotherapists who can deal with fibromyalgia which can be diagnosed normally via the GP using standard criteria which could be discussed with rheumatology if there were any doubt.”
 
The letter also explained
“At the time of writing this there are services at the Barberry in Birmingham, Edgbaston, Bath and Bristol with details on the CFS website which may be able to help where diagnosis and management is needed.”

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Flu, Pneumonia & Covid-19 Booster - National and Local Vaccination Information.
 
Updated information from the ME Association (MEA).
Free New Winter Vaccines Leaflet: Flu, Pneumonia, and Covid-19 Booster  
October 22, 2021
Dr Shepherd reviews the Winter 2021/22 Flu, Pneumonia, and Covid-19 booster vaccines in detail, and answers questions, such as if the Flu and Covid-19 booster are free for people with ME/CFS and the pros and cons of having them.
 
Winter vaccinations: Flu, Pneumonia, & Covid-19 Booster
Introduction  -  Dr Charles Shepherd, Hon. Medical Adviser, ME Association:
To link in with the launch of the NHS flu vaccination campaign this year I have updated our flu and pneumococcal vaccine leaflet. I have included some information about COVID-19 boosters as well.

• This new free leaflet can be download here or included with any purchases made via the website shop.

The key message from this year’s flu vaccine campaign is that having been isolating ourselves from respiratory infections for almost two years our natural immunity to flu viruses has decreased significantly. So, we are likely to see a large rise in the number of people catching flu this winter.
At the same time, flu viruses and COVID-19 virus are going to be circulating in combination – which makes the chances of serious illness far more likely, especially in the elderly and people with underlying health conditions.
COVID-19 is not going to go away in the foreseeable future and it looks as though high case numbers may well persist into early 2022 before hopefully starting to decline.
 
Questions answered in this leaflet include:

1. Are people with ME/CFS entitled to have a free NHS flu vaccine if they choose to do so?
2. Is it safe to have a flu vaccine and a COVID-19 booster vaccine together?
3. Will people with ME/CFS be automatically offered a COVID-19 booster jab?
4. Should I have a COVID-19 booster if I had a bad reaction to the first or second dose?
5. Can I get a COVID-19 booster at home if I cannot get to the surgery or vaccination hub?

 
Consequently, some experts are predicting that the number of deaths from flu this winter could even reach 60,000. So, the aim of this year’s campaign is to vaccinate around 40 million people. In addition to all the usual groups, anyone over the age of 50 can now have a free NHS flu jab and children up to the age of 16 will also be offered one.
All the key points relating to the 2021/2022 flu vaccine and eligibility criteria for the COVID-19 boosters are covered in the Questions and Answers section. More detailed information on flu vaccine, as well as the pneumococcal vaccine, can be found in the second part of this information leaflet.
 
Earlier this week, Covid Booster news from the Independent -
Covid-19: Jonathan Van-Tam defends speed of booster rollout but warns of potentially ‘problematic’ Christmas
November 3, 2021 9:43 am(Updated 2:45 pm)
England’s deputy chief medical officer, Professor Jonathan Van-Tam, has defended the Government’s Covid booster programme after i analysis found the scheme is running so late it may not be completed until February.
He said the booster scheme is picking up “considerable momentum” and suggested limited NHS capacity is preventing a more rapid roll-out of the third doses.
Professor Van-Tan continued to praise England’s roll-out of the scheme and noted the pace of vaccinations had increased in recent weeks.  “Yes of course everyone wants to go faster but we are picking up really quite considerable momentum and it’s really important when you get your call please come forward and get your booster.”
He said the Government will be making it easier for people to book their booster dose by giving patients a few weeks notice to book their slots, enabling them to get the third jab as soon as possible.
 
Covid Booster announcement from the BBC-
Covid: Booster jabs to open earlier for booking in England
6 November
People living in England will be able to book their coronavirus booster jabs a month in advance under government plans to speed up their rollout.
Currently, people cannot book their top-up vaccines until six months have elapsed since their second dose.  But from Monday, those aged 50 and over, plus those most at risk, will be able to book after five months.
It means they could receive their booster on the day they reach the six-month milestone.
NHS England is introducing the change to accelerate the rate of take-up of booster jabs, to help prolong protection against the virus.
 
Being able to book ahead will save receiving text invitations after the appointment time. 
This text was received during the evening of 20 October, and the appointment was anytime from 10.00 am to 3.00 pm on 20 October !! -

Flu Vaccination Information from Worcestershire County Council.
Where can you get the flu jab in Worcestershire?
Flu vaccination will be provided by your GP via flu clinics held in your practice or your local pharmacy.  Please download the list of pharmacies in Worcestershire who are providing flu vaccinations. 
 
For Worcester City Residents
If you’re eligible for a free flu jab on the NHS, your GP practice will invite you to attend our pop-up vaccination centre at Worcester Racecourse.
Worcester City Primary Care Network (PCN)  -
Tried and tested flu protection from your local GP.  Get your free NHS flu jab at Worcester Racecourse this winter.
Worcester City PCN covers -
• Albany House Surgery; • Haresfield Surgery;  • Barbourne Health Centre; 
• Severn Valley Medical Practice - Henwick Halt Health Centre; 
• Elbury Moor Medical Centre;  • Severn Valley Medical Practice - Lyppard
• Grange Health Centre;  • Farrier House Surgery;  • Spring Gardens Group Practice;  • St Johns House Medical Centre;  • St Martin’s Gate Surgery; 
• Thorneloe Lodge Surgery
 
Current flu jab information from the Worcester City PCN website (6 November)
If you’ve been invited to get your flu jab at our centre, you do not need to book an appointment - simply walk in during our opening times.
Vaccination Centre Opening Hours
Our centre at Worcester Racecourse is currently open
from 9am-5pm (Lunch break from 12pm-12:30pm) Mon-Wed,
12pm-8pm (Lunch break from 4pm-4:30pm) Thurs, and
9am-5pm (Lunch break from 12pm-12:30pm) Friday.
Please check back here before your visit - as any changes to opening hours or planned closures will be posted below.
Scheduled Closures  -  Friday 12th November - Closed all day.

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Vaccinations for people with ME/CFS.
Flu & Covid-19 Boosters - National and Local Vaccination Information.

Latest information from the ME Association (MEA).
Update on flu vaccinations and COVID-19 booster vaccinations for people with ME/CFS
September 22, 2021
 
Dr Charles Shepherd, Hon Medical Adviser, MEA, states -
Once the situation on booster vaccines for COVID-19 is absolutely clear I will be updating the current (2020) MEA information leaflet on flu vaccine and pneumococcal vaccine to also include information on the COVID-19 booster jabs.
In the meantime, almost all of the information in the current MEA leaflet on flu vaccine, which is available as a free download from the MEA website, applies to this year’s flu vaccine.
The only important addition to the eligibility criteria list is that everyone over the age of 50 can now have a free NHS flu vaccination.
The MEA information leaflet contains detailed information on how to weigh up the risks and benefits of having a flu vaccine if you have ME/CFS.
As in previous years, the type of flu vaccine given will largely depend on your age:

• The over 65s will be offered an adjuvated quadrivalent influenza vaccine (aQIV)
• Those aged 18 - 64 will be offered QIVc (cell cultured vaccine)
• Children aged 2 - 15 will be offered a live attenuated influenza vaccine (LAIV) unless this is contraindicated

The quadrivalent flu vaccines offer a fairly high degre of protection against the 4 strains of flu (two A strains and 2 B strains) that are most likely to be present this coming winter.

• Current (2020/21) MEA information leaflet on flu vaccination and ME/CFS
• Comprehensive information from the US CDC on current flu vaccines

 
The MEA’s article includes Questions and detailed Answers on flu vaccine and COVID-19 boosters:
1. Are people with ME/CFS entitled to have a free NHS flu vaccine if they choose to do so?
2. Is it safe to have a flu vaccine and COVID-19 booster vaccine together?
3. Will people with ME/CFS be automatically offered a COVID-19 booster jab?
4. Should I have a COVID-19 booster if I had a bad reaction to the first or second dose?
5. Can I get a booster jab at home if I cannot get to the surgery or vaccination hub?
 
 
Information from Worcestershire County Council.
Where can you get the flu jab in Worcestershire?
Flu vaccination will be provided by your GP via flu clinics held in your practice or your local pharmacy.  Please download the list of pharmacies in Worcestershire who are providing flu vaccinations. 
 
For Worcester City Residents
If you’re eligible for a free flu jab on the NHS, your GP practice will invite you to attend our pop-up vaccination centre at Worcester Racecourse.
Worcester City Primary Care Network (PCN).  Tried and tested flu protection from your local GP.  Get your free NHS flu jab at Worcester Racecourse this winter.
Worcester City PCN covers - Albany House Surgery,; Haresfield Surgery;  Barbourne Health Centre;  Severn Valley Medical Practice - Henwick Halt Health Centre;  Elbury Moor Medical Centre;  Severn Valley Medical Practice - Lyppard Grange Health Centre;  Farrier House Surgery;  Spring Gardens Group Practice;  St Johns House Medical Centre;  St Martin’s Gate Surgery;  Thorneloe Lodge Surgery
 
Worcester News - Worcester's first mass flu-vaccination site to open at racecourse.

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Warwick Davis passed away peacefully on Monday 5 July.  Warwick will be sadly missed by his family and his many friends.

Warwick’s funeral will be held on Monday August 9th at 11.00 am, at Stourbridge Crematorium, South Road, Stourbridge, West Midlands, DY8 3RQ.

Due to the Covid situation the Funeral Director needs a list of all those attending, but we understand that people not on the list who do turn up will be allowed to attend.  If you are hoping to attend, please contact the Worcestershire ME Social Group by email or phone so we can pass on your name, address and telephone number, please.

Many of Warwick’s friends will have heard him talk about ME/CFS Research, and that he wanted his body to be used for research into ME/CFS.  You will be pleased to hear that his wishes have been carried out.  Our Group heard from Dr Charles Shepherd, the ME Association’s Hon. Medical Adviser, who was in contact with Sue Wildblood, one of Warwick’s cousins.

Earlier this year Warwick talked about his wish to see his sister Carol and her family in Australia to celebrate his 75th birthday, but with the COVID situation sadly that couldn’t happen.

Flowers, or donations to Macmillan Cancer Support, can be sent to the funeral directors, Vernon Kendrick, Greenfield House, 11 Greenfield Avenue, Stourbridge, West Midlands, DY8 1ST.

Warwick was the Worcestershire ME Support Group’s Vice Chairman and Area Contact for Hagley, and helped with the organisation of the group’s meetings in Kidderminster.  Many people will also have met him when he organised the Social Group’s Lunches across the county for many years.

Last year, Warwick wrote to the ME Association (MEA), giving details of his involvement with a ‘Case study for long term illness’ at his local surgery.  The letter was published on page 55, of the Winter 2020 edition of the MEA’s ‘ME Essential’ magazine, and is included below following the kind permission received from Caroline Cavey, the ME Essential Editor.

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Grab a Jab Vaccination Clinics during July in Bromsgrove, Malvern and Worcester.
The Worcestershire County Council’s recent Covid-19 announcement .-
Grab a jab clinics now open during July 2021
If you are 18 or over you can grab a Jab at the following sites this July.  No need to book, simply turn up to get your vaccination.
•    Artrix, Bromsgrove, B60 1GN: Monday to Saturday 8.00am to 7.30pm and Sunday 8.00am to 1.30pm. (AstraZeneca and Pfizer vaccinations available)
•    Three Counties Showground, Malvern, WR13 6NW: Monday to Friday 8.00am to 5.00pm or Saturday 8.00am to 1.30pm (AstraZeneca and Moderna vaccinations available)
•    St Peter’s Baptist Church, Worcester, WR5 3TZ: Monday to Saturday 8.00am to 7.00pm (AstraZeneca and Moderna vaccinations available)

The Bromsgrove Advertiser -
HEALTH Secretary and Bromsgrove MP Sajid Javid is self-isolating after testing positive for Covid-19.  In a statement posted on Twitter, Mr Javid said he was awaiting the result of a full PCR test and had only mild symptoms.
“This morning I tested positive for Covid. I’m waiting for my PCR result, but thankfully I have had my jabs and symptoms are mild,” he said.
“Please make sure you come forward for your vaccine if you haven’t already.”
The Health Secretary’s announcement comes as the Government prepares to go ahead with the final lifting of lockdown restrictions in England on Monday, despite the misgivings of some scientists.

Number of Worcestershire Covid Cases currently rising rapidly.
The Worcestershire County Council’s Worcestershire COVID-19 situation dashboard gives the 7 day rate per 100,000.  Information below shows changes during the last fortnight.

7 day rate per 100,000 given on the morning of 4 July
(see our previous blog)   
Bromsgrove 143
Malvern Hills 119
Redditch 79
Worcester 133
Wychavon 85
Wyre Forest 81

7 day rate per 100,000 given this morning 18 July
Bromsgrove 447
Malvern Hills 276
Redditch 300
Worcester 590
Wychavon 283
Wyre Forest 321

The Worcestershire County Council also announces -
National restrictions update - 12 July 2021
The Prime Minister has confirmed we will be moving to Step 4 of the roadmap to end COVID-19 restrictions in England.
The decision to open up has been made in a balanced and careful way, with the Prime Minister being clear that we will need to follow the new guidance to help keep ourselves and each other safe while we learn to live with the virus.
Legal restrictions will end on Monday 19 July 2021
More information on the announcement can be found on the Government website (opens in a new window).  As Step 3 restrictions will remain in place until 19 July, you should continue to follow the guidance on what you can and cannot do from GOV.UK (opens in a new window).

Please see the blog post of 4 July for more Covid-19 Guidance from Worcestershire County Council and ME Association.

Sad news from the Worcestershire ME Social Group - Warwick Davis passed away peacefully on Monday 5 July, losing his life to cancer.

Warwick was the Worcestershire ME Support Group’s Vice Chairman, and helped with the organisation of the group’s meetings in Kidderminster.  Many people will then have met him when he organised the Social Group’s Lunches across the county for many years.  He would turn up to the lunches and be there whether there was one or many people joining him.

For many years Warwick was invited to attend his local GP Surgery and give talks about M.E. to medical students as part of their training.

He will be sadly missed by many.

Warwick can be seen at the afternoon café meeting during the ME Awareness Week in May 2018, and together with his much loved dog Clyde in 2011, collecting for ME Research UK.

Blog post May 2018: Worcestershire CFS/ME service - Twitter Takeover
Marina (Team Lead/ Specialist Occupational Therapist) and George (Honorary Assistant Psychologist) dropped in on the social group at the afternoon cafe meeting today.

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The Worcestershire County Council’s recent Covid-19 announcement -
Coronavirus (COVID-19)
Update situation from the Worcestershire County Council -
Update - 30 June 2021 
Latest figures show Bromsgrove once again has the highest COVID-19 figures in the county.  Public Health in Worcestershire has been monitoring the situation. They have found cases are spreading in residents who are under 30.
Public Health advise everyone to keep following the rules, continue taking a regular rapid flow test and for anyone 18 and over, to get vaccinated.
Councillor Karen May, Leader of Bromsgrove District Council and cabinet member with responsibility for Health and Wellbeing said:
“We have come such a long way over the last year. Bromsgrove has worked hard to reduce the spread off the virus and keep everyone safe. We mustn’t let our hard work go to waste.  The numbers are rising in people who have not been vaccinated. Please don’t put off booking yours.  It's the best way to keep your family and friends safe.  I know, together we can do this, and get the numbers down."
The Worcestershire County Council also gives National Restrictions Update information following the Prime Minister’s announcement on 14 June.
 
The Worcestershire County Council’s Worcestershire COVID-19 situation dashboard -
The 7 day rate per 100,000 - given on the morning of 4 July:
Bromsgrove - 143
Worcester - 133
Malvern Hills - 119
Wychavon - 85
Wyre Forest - 81
Redditch - 79
 
The Worcestershire County Council Covid-19 website also gives Advice and Guidance on -
Get a test;  Self-isolation;  Vaccinations;  Traveling abroad;  Report cases;  NHS Test and Trace and using the App;  Test and trace support payment;  What is a contact?;  Face coverings;  Social distancing;  Advice for the clinically extremely vulnerable;  Need support?;  Help for businesses;  Easy read;  Information in other languages .
 
Plus our county’s two dashboards -  Worcestershire COVID-19 vaccinations dashboard , and Worcestershire COVID-19 situation dashboard
 
The ME Association’s (MEA) Covid-19 Free Resources.
MEA ME/CFS & COVID-19 Free Resources
During the unprecedented Covid-19/Coronavirus pandemic, we have ensured that people with ME/CFS - and those who continue to experience symptoms following infection - are kept informed of the latest guidance and related information.
All the leaflets and template letters relating to the Covid vaccination are free to download.  We periodically review and update them when new information emerges or the situation regarding the national restrictions are changed.  Please note these leaflets are downloads. You can read them on-screen and save to your computer, phone or other device and can attach them to any email you might need to send. But you will need access to a printer if you wish them printed.
 
See the MEA website for downloadable guidance leaflets and letter templates -
 
Covid-19 & ME/CFS Guidance:
Long Covid & ME/CFS: Information & Management May 2021
Covid-19 & ME/CFS Vaccine Update May 2021
Covid-19 & ME/CFS Reducing the Risk of Infection - November 2020
 
Letter Templates: Covid-19 & ME/CFS
Covid-19 & ME/CFS Clinical Vulnerability Adults
Covid-19 & ME/CFS Clinical Vulnerability Students
ME Association Covid Vaccine Eligibility Template Letter (V5) (19 March 2021)
MEA Letter to CCGs (England) & Health Boards (Wales) - 19 March 2021
 
Take care, and stay safe everyone.


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Please encourage your local MP to join the next APPG (All Party Parliamentary Group) on ME meeting.
 
The ME Association announced -
APPG on ME: Annual General Meeting and the impact of COVID-19 on people with ME/CFS. 
The Annual General Meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME) will take place on Monday 19 April between 11:00 - 12:00. 
Your MP should RSVP to carol.monaghan.mp@parliament.uk if they are hoping to attend this meeting so they can obtain the zoom link.
 
From the MEA article -
In addition to AGM business, this meeting will focus on the impact of the COVID-19 pandemic on the ME community. 
Points of discussion will include the clinical and pathological overlaps between ME and Long Covid, the COVID-19 vaccination programme and JCVI guidance for ME patient prioritisation, and the general challenges facing the ME community at this difficult time.  
At this stage two guest speakers are confirmed who will share their expertise through short presentations and a Q&A discussion: 

1. Dr David Strain, a Senior Clinical Lecturer at the University of Exeter Medical School and Honorary Consultant in medicine for the older adult who is heavily involved in the British Medical Association COVID response team.
2. Dr Nina Muirhead, a Buckinghamshire Healthcare NHS Trust Dermatologist who is actively working to deliver better education for healthcare professionals on the topic of ME.

Background Information relating to the overlap between Long Covid and ME/CFS:
The overlap between ME/CFS and Long covid from a British Medical Association publication, including contributions from Dr David Strain, Dr Nina Muirhead, Dr Charles Shepherd and Dr Amy Small can be read here.

• Article in Pharma Technology Focus
• Dr David Strain talking on the BBC Horizon programme on Long Covid.

 
For local Covid-19 advice and guidance, see the Worcestershire County Council news items, and for Covid-19 information specifically for people affected by ME/CFS see further posts on the blog.

Take care, and stay safe everyone.

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