Hereford Group highlighted on the MEA (ME Association)
J Simpson responds to Tony and Pat Adams, Co-chairs, Herefordshire CFS/ME/FMS Group
‘It is time for us to take M.E. seriously’ |
Letter to the Hereford Times | 21 August 2015
From the Hereford Times, 21 August 2015/
WELL done, Tony and Pat Adams for highlighting the plight of sufferers of ME and fibromyalgia in Herefordshire (No county facility for these illnesses, Letters, August 6).
A study in Denmark confirmed these opinions:
“In comparison with other chronic illnesses such as multiple sclerosis, end-stage renal disease and heart disease, patients with ME show markedly higher levels of disability” (Quality of Life and Symptom Severity for Individuals…from a Randomised Clinical Trial, RR Taylor, American Journal of Occupational Therapy 2004:58:35-43).
And Professor Nancy Klimas, of the University of Miami, has said:
“There is evidence that the patients with this illness [ME] experience a level of disability that is equal to that of patients with late-stage AIDS, patients undergoing chemotherapy (and) patients with multiple sclerosis,”
What does Herefordshire Clinical Commissioning Group do for us? The answer is nothing.
MS? Come to the clinic.
AIDS? Come to the clinic.
Renal disease? Come to the clinic.
ME? (Worse quality of life than all those.) Close the door on the way out.
J SIMPSON, Bartestree
HERE’S THE ORIGINAL LETTER BY TONY AND PAT ADAMS: www.herefordtimes.com/news/letters/13581235.No_county_facilities_for_these_illnesses/