The ME Association (MEA) explain why they are asking about healthcare plans. This survey will help the MEA respond on behalf of pwME during the construction of the new NICE Guideline.
The MEA November website survey - is half-way down on the home page of the MEA website. The MEA article includes Care Plan information from the current NICE Guideline NICE Guideline ME/CFS: General Principles of Care.
“The healthcare professional responsible for your care should make a care plan with you, which is looked at and kept up to date every time you see a healthcare professional about your CFS/ME.”
“It should include the symptoms and history of your condition, plans of treatments and self-help techniques you may be using, information and support needs, plans for work or education, and contact details of the healthcare professionals caring for you.”
“Your care should be given in ways that are suitable for you. This may mean having some tests or treatments at home or getting support and advice by telephone or email.”