Most of the NHS clinics for people with ME/CFS in this MEA directory base their management programme on the possible use of cognitive behaviour therapy (CBT) and/or two differing approaches to activity/energy management known as graded exercise therapy (GET) and Pacing.
We suggest that you download and read the summary of the recommendations from the MEA ‘patient evidence’ report on CBT, GET and Pacing before deciding which of these approaches to management you think would be acceptable and may be helpful in your situation.
You could also take a copy of the summary of the MEA Report to the clinic if you have any questions or concerns about the sort of management programme that is being offered or recommended - if it involves CBT or some form of activity management.
In line with what is known as informed consent, people should not be coerced or persuaded into taking part in any form of management (drug or non-drug) where they have concerns over acceptability, effectiveness or safety - all of which should be discussed between doctor and patient before a decision on management is made.
Dr Charles Shepherd
Hon Medical Adviser, ME Association
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