We aim to find genetic causes of why people become ill with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) with our ground-breaking research.
March 2024 Newsletter update from the DecodeME Study
We have an important project update to share with you. DecodeME participants have done a great job completing questionnaires and returning spit samples. But the next step - extraction of DNA at UK Biocentre - has faced operational and capacity issues.
We have been working hard with UK Biocentre to resolve as many of these issues as possible and to avoid delays. While some issues were mitigated, it became obvious that we simply would not have enough time to perform all necessary data analyses by August 2024, the planned end date.
We discussed this situation with both our Scientific Advisory Board and funders. They agreed with our assessment and funding has been awarded to extend the project until August 2025. This will give us sufficient time to finish the project.
We are acutely aware of the urgency to deliver the study results as soon as possible and we continue to work as hard as we can to fulfill these goals. We remain fully committed to completing this research to the highest possible scientific standards, ensuring that our findings are as robust as possible. To find out more, please read our blog here.
Warmest wishes,
The DecodeME Team
DecodeME Partnership,
42 Temple Street, Keynsham, BS31 1EH,,
www.decodeme.org.uk
For further background information, including information from Action for ME, The Medical Research Council, the National Institute for Health Research, the ME Association, and press articles go to our group’s previous • DecodeME blogs These include -
• DecodeME the ME/CFS Study August 2023 Newsletter
• ME/CFS Biomedical Partnership - Genetics Research - DecodeME UPDATE (2 September) ;
• ME/CFS Biomedical Partnership - Genetics Research. ;
• Biomedical Genetics Research: The ME/CFS Biomedical Partnership.
• DecodeME • Research