Worcestershire M.E. Social Group
  • Home
  • About Us
    • Contact Form
  • About M.E.
    • NHS in Worcestershire
  • Meetings
  • News Blog
    • View Blog Categories
    • News feeds
    • News Archive
  • Links
  • Search
  • Benefits

Coronavirus (Covid-19): Letter to Supermarkets & MPs

29/3/2020

 
ME Charities and APPG on ME write to Supermarkets & UK Government.

ME Research UK - letter explaining how things are for people with ME/CFS.

Letter sent to major supermarket chains and UK Government from UK ME charities and the All Party Parliamentary Group on ME
Posted on 27 Mar 2020


We are writing on behalf of the adults, children and young people we support who have Myalgic Encephalomyelitis (M.E.) (also known as Chronic Fatigue Syndrome, or CFS), asking for your help.

The Government has identified that people with chronic neurological conditions, including M.E./CFS, are at increased risk of severe illness from Coronavirus.

More than one in four people with M.E./CFS are so severely affected that they are unable to leave their homes independently, and even those with the milder form of this non-visible illness struggle to access services and support.

Many of those we support have relied on the excellent home delivery service you offer for years, to get food and essential supplies. But over the past few weeks the increased demand has meant they are unable to compete with healthy people who are able to spend longer online, searching for slots and sourcing deliveries.

We are also hearing from those who are able to visit stores who have tried to use the dedicated shopping times for those at risk – but who have been challenged because the debilitating pain, fatigue and cognitive difficulties that come with this non-visible condition cannot be seen.

We are now seeing a huge increase in the number of calls to our already busy helplines, with many telling us they do not have any food in the house.
While those who are house/bed-bound are not necessarily included in the Government’s official category of “vulnerable,” this does not give the full picture.

This group of increasingly desperate people are unable to visit a store and many have no friends or family to support them. They need urgent help now – please will you:
  • include those house/bed-bound by M.E./CFS in your priority access group for your online service?
  • allow those with M.E./CFS, who are able to leave the house, access to priority shopping times in store?

We would be happy to provide our members with a resource they can download that shows they have a chronic neurological condition and are eligible to use this service.

Our teams are happy to help answer any questions or provide more information.

Carol Monaghan MP, Chair, APPG for M.E.

The Countess of Mar, Chair of Forward-ME

Ben Lake MP; Jim Shannon MP ; Mark Tami MP Dr James Davies MP; Edward Davey MP: Alex Sobel MP; Dame Diana Johnson MP.

Sonya Chowdhury, Chief Executive Action for M.E.

Nigel Riley, Chair, ME Association

Sue Waddle, Vice Chair, ME Research UK

Esperanza Moreno, #MEAction UK

Helen Winning, Chief Executive, The ME Trust

Simon Lawrence, Chair, The 25% ME Group

Jane Colby, Executive Director, Tymes Trust

Janice Kent, Director, reMEmber

Dr Nina Muirhead, Chair, Medical Education Group UK CFS/ME Research Collaborative

Dr William Weir

Dr Nigel Speight
 

Comments are closed.

    Group Blog

    • News
    • AfME/ MEA/ Government news
    • Benefits News

    Categories

    All
    25% M.E. Group
    Action For ME
    A.P.P.G
    B.B.C
    Benefits
    Carers
    Children
    Coronavirus (COVID 19)
    DecodeME
    Fibromyalgia
    Forward ME
    Fundraising
    Government U.K.
    Hereford
    Local News
    Malvern
    #MEAction
    M.E. Association
    Medical Research Council
    Meetings
    MERUK
    MP
    National Newspapers
    N.H.S.
    N.I.C.E.
    Parliament U.K.
    Post COVID Syndrome (Long COVID)
    Research
    Sleep
    The ME Trust
    Tymes Trust
    Worcester City Council
    Worcestershire
    Worcestershire County Council
    Worcestershire M.E. Social Group
    Worcestershire M.E. Support Group


    Archives

    November 2023
    October 2023
    September 2023
    August 2023
    July 2023
    May 2023
    April 2023
    March 2023
    January 2023
    November 2022
    October 2022
    July 2022
    June 2022
    May 2022
    April 2022
    March 2022
    February 2022
    January 2022
    December 2021
    November 2021
    October 2021
    September 2021
    August 2021
    July 2021
    June 2021
    May 2021
    April 2021
    March 2021
    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    June 2019
    April 2019
    February 2019
    January 2019
    December 2018
    November 2018
    September 2018
    August 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    May 2017
    April 2017
    February 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    May 2015
    April 2015
    March 2015
    January 2015
    January 2013
    December 2012
    November 2012
    January 2008
    December 2007
    June 2004

    RSS Feed

Powered by Create your own unique website with customizable templates.