BE COUNTED. BE HEARD. #CountMEin. The ME Association #CountMEin Survey for everyone who might have symptoms or a diagnosis of ME/CFS and/or Long Covid in the UK,,Channel Islands, and the Isle of Man,
‘Count ME In’ - M.E. charity calls for an end to NHS neglect!
The campaign will run during 2023 and the ME Association’s (MEA) will share the survey outcomes which will be produced in December.
Extracts from the MEA’s announcement on May 22nd -
In a first-time test of public opinion, Britain’s oldest charity for people with the energy-sapping disease Myalgic Encephalomyelitis will today start asking hundreds of thousands of sufferers whether they’re satisfied with the support they’re getting from the National Health Service.
Martine Ainsworth-Wells, campaigns director at the ME Association, said:
“We know the picture will be patchy - but we want to hear directly from people with the illness, or from those still without a diagnosis, how well or indeed how badly they think the NHS is performing.”
Today (Monday, 22nd May), the Buckinghamshire-based charity launches a major survey to find the answers. The survey will be backed by a nationwide social media and digital advertising campaign scheduled to last several months. This attempt to reach huge numbers of patients, many of whom have given up on seeing their doctors because of breakdowns in the doctor-patient relationship, has never been tried before.
COUNT ME IN. LET YOUR VOICE BE HEARD
We are asking people to complete a short survey about their health experiences and the support they have received from the NHS and social care services.
This anonymous survey will help us to:
The MEA’s Survey information -
We understand that you might not have the energy to complete the survey yourself, so please allow your carer, parent or guardian, family member, or friend, to complete it on your behalf.
Thank you for taking the time to complete the survey today for the ME Association.
It will take around 10 minutes, and if you aren't able to complete it all in one go, your progress will automatically save and you can return later for up to 3 days.
This survey is run by One Minute to Midnight, a market research agency, on behalf of the ME Association. All your answers will be treated in complete confidence in accordance with the Market Research Society Code of Conduct and GDPR. We will not be asking you for any personally identifiable information.
Completing this survey will enable the ME Association to:
Further information on the MEA website on June 30, 2023
Take the Survey
#CountMEin is a major campaign whose purpose is to reach as many people as we can who think they might be affected by symptoms - or who have a diagnosis - of ME/CFS or Long Covid.
Survey Purpose
Further information on the MEA website. - https://meassociation.org.uk/
• M.E. Association
‘Count ME In’ - M.E. charity calls for an end to NHS neglect!
The campaign will run during 2023 and the ME Association’s (MEA) will share the survey outcomes which will be produced in December.
Extracts from the MEA’s announcement on May 22nd -
In a first-time test of public opinion, Britain’s oldest charity for people with the energy-sapping disease Myalgic Encephalomyelitis will today start asking hundreds of thousands of sufferers whether they’re satisfied with the support they’re getting from the National Health Service.
Martine Ainsworth-Wells, campaigns director at the ME Association, said:
“We know the picture will be patchy - but we want to hear directly from people with the illness, or from those still without a diagnosis, how well or indeed how badly they think the NHS is performing.”
Today (Monday, 22nd May), the Buckinghamshire-based charity launches a major survey to find the answers. The survey will be backed by a nationwide social media and digital advertising campaign scheduled to last several months. This attempt to reach huge numbers of patients, many of whom have given up on seeing their doctors because of breakdowns in the doctor-patient relationship, has never been tried before.
COUNT ME IN. LET YOUR VOICE BE HEARD
We are asking people to complete a short survey about their health experiences and the support they have received from the NHS and social care services.
This anonymous survey will help us to:
- Improve NHS and social care services
- Raise much-needed awareness
- Better understand how people's lives are affected
- Help people find support, learn more about symptoms, obtain an accurate diagnosis and find specialists
The MEA’s Survey information -
We understand that you might not have the energy to complete the survey yourself, so please allow your carer, parent or guardian, family member, or friend, to complete it on your behalf.
Thank you for taking the time to complete the survey today for the ME Association.
It will take around 10 minutes, and if you aren't able to complete it all in one go, your progress will automatically save and you can return later for up to 3 days.
This survey is run by One Minute to Midnight, a market research agency, on behalf of the ME Association. All your answers will be treated in complete confidence in accordance with the Market Research Society Code of Conduct and GDPR. We will not be asking you for any personally identifiable information.
Completing this survey will enable the ME Association to:
- Inform more people about ME/CFS and Long Covid, help them obtain an accurate
diagnosis if needed, and find the right support to improve their life quality. - Produce an independent report that will raise awareness and help us improve the
standard of healthcare by working with the NHS and social care services.
Further information on the MEA website on June 30, 2023
Take the Survey
#CountMEin is a major campaign whose purpose is to reach as many people as we can who think they might be affected by symptoms - or who have a diagnosis - of ME/CFS or Long Covid.
Survey Purpose
- To reach as many people as we can in the UK, Channel Islands, and the Isle of Man, who might have symptoms or a diagnosis of ME/CFS and Long Covid.
- To gain insight into how these symptoms and diagnoses are affecting people’s lives and how effective the support from the NHS and social care services has been.
- We can help more people learn about and recognise ME/CFS and Long Covid, obtain an accurate diagnosis if they need one, and access the most suitable management advice to help improve life quality.
- A report will be produced based on the anonymous survey responses that will be used to:
- support continuing efforts to influence others about how people are affected and their ability to access health and social care when needed.
- help improve health and social care services, work with healthcare providers to effectively implement the NICE Clinical Guideline recommendations, and to recognise the importance of listening to patients and tailoring care accordingly.
Further information on the MEA website. - https://meassociation.org.uk/
• M.E. Association
RSS Feed
