Below is an Invitation to participate in the development of a Clinical Assessment Toolkit for people with ME/CFS, and the Clinical Services.
Stage 3: The ME Activity Questionnaire (MEAQ).
Adults in the UK, who have been diagnosed with Myalgic Encephalomyelitis (ME), which is also known as chronic fatigue syndrome (CFS) are invited to complete an online questionnaire. This includes people whose ME/CFS was triggered by a Covid infection (i.e. Long Covid).
The aim of the Clinical Assessment Toolkit is to help people with ME/CFS and Clinical Services identify, understand and quantify people’s symptoms and disabilities. It will also support goal setting, treatment planning, and monitor changes.
The work is led by Prof Sarah Tyson (University of Manchester), who has ME herself. Prof Tyson explains that the aim of this questionnaire is to measure activity levels, and ask about the adaptations people may make to manage symptoms, and/or energy levels. This is the 3rd stage of a research study to develop a Clinical Assessment Toolkit for ME/CFS.
The survey for people with ME/CFS to test out the ME Activity Questionnaire (MEAQ) is now ready for recruitment by following this link -
https://www.qualtrics.manchester.ac.uk/jfe/form/SV_4GBQxvdf3mgdW1E
Stage 3: The ME Activity Questionnaire (MEAQ).
Adults in the UK, who have been diagnosed with Myalgic Encephalomyelitis (ME), which is also known as chronic fatigue syndrome (CFS) are invited to complete an online questionnaire. This includes people whose ME/CFS was triggered by a Covid infection (i.e. Long Covid).
The aim of the Clinical Assessment Toolkit is to help people with ME/CFS and Clinical Services identify, understand and quantify people’s symptoms and disabilities. It will also support goal setting, treatment planning, and monitor changes.
The work is led by Prof Sarah Tyson (University of Manchester), who has ME herself. Prof Tyson explains that the aim of this questionnaire is to measure activity levels, and ask about the adaptations people may make to manage symptoms, and/or energy levels. This is the 3rd stage of a research study to develop a Clinical Assessment Toolkit for ME/CFS.
The survey for people with ME/CFS to test out the ME Activity Questionnaire (MEAQ) is now ready for recruitment by following this link -
https://www.qualtrics.manchester.ac.uk/jfe/form/SV_4GBQxvdf3mgdW1E
Patient Reported Outcome Measures (PROMs) in ME/CFS
April 9, 2024
This week, the ME Association's latest announcement on this subject, with a statement from Professor Tyson.
ME Association funds research for a new clinical assessment toolkit in
NHS ME/CFS specialist services
May 8, 2023
In May last year, the ME Association (MEA) initially announced this research project, with a message from Professor Sarah Tyson, University of Manchester, and a response from Dr Charles Shepherd, Hon. Medical Adviser to the ME Association.
• Coronavirus (COVID 19)
• M.E. Association
• Post COVID Syndrome (Long COVID)
• Research
April 9, 2024
This week, the ME Association's latest announcement on this subject, with a statement from Professor Tyson.
ME Association funds research for a new clinical assessment toolkit in
NHS ME/CFS specialist services
May 8, 2023
In May last year, the ME Association (MEA) initially announced this research project, with a message from Professor Sarah Tyson, University of Manchester, and a response from Dr Charles Shepherd, Hon. Medical Adviser to the ME Association.
• Coronavirus (COVID 19)
• M.E. Association
• Post COVID Syndrome (Long COVID)
• Research
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